How does Johns Hopkins approach MS treatment. What diagnostic methods are used for MS. How is personalized care provided for MS patients. What resources are available for MS patients at Johns Hopkins. How can patients schedule an appointment at the MS Center.

The Johns Hopkins Multiple Sclerosis Center: A Leader in MS Care

The Johns Hopkins Multiple Sclerosis Center stands as one of the largest clinical and research MS centers globally. With a commitment to cutting-edge technology and research, coupled with a patient-first approach, the center aims to provide targeted diagnosis and treatment for individuals with multiple sclerosis (MS).

At the core of their philosophy is the understanding that each person’s experience with MS is unique. This recognition drives their approach to designing treatment plans that align with each patient’s specific needs, lifestyle, and health concerns. The ultimate goal? To offer the right treatment at the right time, with an eye towards eventually curing this complex disease.

Comprehensive Approach to MS Diagnosis and Treatment

The Johns Hopkins MS Center believes in a team approach to MS care. Their comprehensive strategy involves:

• Thorough neurological evaluations
• Expert interpretation of MRI studies
• Nursing assessments
• Physical therapy evaluations
• Social work support

This coordinated, multi-specialty approach ensures accurate diagnosis, high-quality patient care, and the development of effective long-term treatment plans.

Advanced Diagnostic Techniques

Years of research and clinical experience have enabled the center to develop a system of personalized assessment and monitoring for MS. This system helps anticipate and prepare for changes in a patient’s condition. The evaluation methods include:

• Innovative diagnostic tests for precise MS type identification
• State-of-the-art imaging tests
• Comprehensive lifestyle assessments
• Detailed reviews of medical history
• Ongoing genetic and blood tests

One particularly noteworthy diagnostic tool is optical coherence tomography (OCT). This simple imaging test of the retina can help identify the likelihood of rapid disease progression and guide treatment decisions.

Personalized Treatment Plans for MS Patients

As leaders in both patient care and biomedical discovery, the Johns Hopkins MS Center provides the highest level of research-based, personalized care. Their team creates individualized MS treatment plans that may include:

1. Managing MS flare-ups and accelerating recovery using steroids and other medications
2. Reducing the frequency and severity of MS flare-ups with FDA-approved drugs like beta interferon and glatiramer acetate
3. Addressing both physical symptoms and mental health implications through a combination of medications, physical and occupational therapy, and rehabilitation psychology

The center’s approach to treatment is holistic, addressing not just the physical manifestations of MS but also its impact on mental health and overall quality of life.

Cutting-Edge Research and Clinical Trials

As a leading research institution, Johns Hopkins is at the forefront of MS research. Their ongoing studies and clinical trials offer patients access to the latest treatments and therapies, often before they become widely available.

How does participation in clinical trials benefit MS patients? By taking part in these studies, patients not only gain access to potentially groundbreaking treatments but also contribute to the advancement of MS research. This collaborative approach between researchers and patients plays a crucial role in the ongoing quest to better understand and treat multiple sclerosis.

Predictive Tools in MS Care

The Johns Hopkins MS Center is pioneering the use of predictive tools in MS care. Through ongoing genetic and blood tests, they aim to identify patients at risk for future disability. This forward-thinking approach allows for more proactive treatment strategies, potentially mitigating the progression of the disease.

How do these predictive tools work? By analyzing genetic markers and specific blood indicators, researchers can identify patterns that may suggest a higher risk of rapid disease progression or severe disability. This information allows clinicians to tailor treatment plans more effectively, potentially intervening earlier with more aggressive therapies when necessary.

Patient Resources and Support Services

The Johns Hopkins MS Center recognizes that comprehensive care extends beyond medical treatment. They offer a range of resources and support services to help patients navigate life with MS:

• Educational programs about MS management
• Support groups for patients and caregivers
• Rehabilitation services
• Counseling and mental health support
• Assistance with insurance and financial planning

These resources aim to empower patients with knowledge and support, helping them maintain the highest possible quality of life despite their diagnosis.

Scheduling an Appointment at the MS Center

For those seeking care at the Johns Hopkins Multiple Sclerosis Center, the first step is scheduling an initial appointment. This typically takes place at the Johns Hopkins Outpatient Center.

What information do patients need to provide when scheduling an appointment? The center requires:

• Recent medical records
• Reports of any MRI testing and other radiology tests
• A list of current medications
• Physician referral
• Lab reports
• Any other relevant medical records

Patients should submit this information to the Referral Coordinator, who will assist with scheduling. The center also recommends that patients contact their insurance company to verify coverage for various services, including radiology, lab work, psychiatry, and physical therapy.

Preparing for Your First Visit

To make the most of your first appointment at the MS Center, it’s important to come prepared. What should patients bring to their first visit?

• Original (or copies) of any MRIs of both the brain and spinal cord
• Recent test results not already sent to the center (e.g., visual evoked potentials or lumbar puncture results)
• A comprehensive list of medications, including doses, start dates, prescribing physicians, and reasons for use

By providing this information, patients enable the MS Center team to conduct a thorough evaluation and develop an effective treatment plan more efficiently.

The Importance of Collaborative Care in MS Management

The Johns Hopkins Multiple Sclerosis Center emphasizes the importance of collaborative care in managing MS. This approach involves not only the various specialists within the center but also close cooperation with the patient’s primary care physician and other healthcare providers.

Why is collaborative care so crucial in MS management? Multiple sclerosis is a complex disease that can affect multiple body systems. By fostering collaboration between different medical specialties, the center ensures that all aspects of a patient’s health are considered in their treatment plan. This holistic approach can lead to better outcomes and improved quality of life for MS patients.

Integrating Complementary Therapies

In addition to conventional medical treatments, the Johns Hopkins MS Center recognizes the potential benefits of complementary therapies in managing MS symptoms and improving overall well-being. These may include:

• Acupuncture
• Massage therapy
• Mindfulness and meditation practices
• Yoga and tai chi
• Nutritional counseling

How do these complementary therapies fit into MS treatment plans? While not replacements for medical treatment, these therapies can often help manage symptoms like fatigue, pain, and stress. The MS Center team works with patients to integrate these approaches safely and effectively into their overall care plan.

Advancements in MS Research at Johns Hopkins

As a leading research institution, Johns Hopkins is continually pushing the boundaries of MS research. Their ongoing studies cover a wide range of areas, including:

• Genetic factors influencing MS susceptibility and progression
• Novel imaging techniques for earlier and more accurate diagnosis
• Potential neuroprotective and remyelinating therapies
• The role of the gut microbiome in MS
• Personalized medicine approaches to MS treatment

How do these research efforts translate into improved patient care? The close integration of research and clinical practice at Johns Hopkins means that new discoveries can be quickly translated into improved diagnostic tools and treatment strategies. This rapid translation of research findings into clinical practice ensures that patients benefit from the latest advancements in MS care.

Emerging Therapies and Clinical Trials

The Johns Hopkins MS Center is actively involved in numerous clinical trials testing new therapies for MS. These trials offer patients the opportunity to access cutting-edge treatments that may not yet be widely available.

What types of emerging therapies are being studied? Current areas of investigation include:

• Novel immunomodulatory drugs
• Stem cell therapies
• Targeted molecular therapies
• New approaches to managing MS symptoms
• Innovative rehabilitation techniques

Participation in clinical trials not only offers potential benefits to individual patients but also contributes to the broader advancement of MS treatment, potentially helping countless future patients.

The Role of Technology in MS Care at Johns Hopkins

The Johns Hopkins MS Center leverages cutting-edge technology to enhance patient care and research efforts. Advanced imaging techniques, such as high-resolution MRI and PET scans, allow for more precise diagnosis and monitoring of disease progression.

How does technology improve MS care? Here are some key ways:

• Telemedicine platforms enable remote consultations and follow-ups, improving access to care
• Wearable devices help track symptoms and activity levels in real-time
• Advanced data analytics tools allow for more personalized treatment plans
• Virtual reality systems aid in rehabilitation and symptom management
• Electronic health records facilitate better coordination of care across specialties

By embracing these technological advancements, the MS Center can provide more efficient, effective, and personalized care to its patients.

Artificial Intelligence in MS Research

Artificial intelligence (AI) is playing an increasingly important role in MS research at Johns Hopkins. AI algorithms are being used to analyze large datasets, identify patterns, and make predictions about disease progression and treatment outcomes.

What are some specific applications of AI in MS research? Current projects include:

• Automated analysis of MRI scans to detect subtle changes in brain structure
• Predictive models for personalized treatment selection
• Natural language processing of patient records to identify trends and risk factors
• Machine learning algorithms for early detection of MS progression

These AI-driven approaches have the potential to revolutionize MS care, enabling more precise diagnosis, personalized treatment plans, and improved prediction of disease course.

Patient Education and Empowerment at Johns Hopkins MS Center

The Johns Hopkins MS Center places a strong emphasis on patient education and empowerment. They believe that well-informed patients are better equipped to manage their condition and make informed decisions about their care.

What educational resources does the center provide? Patients have access to:

• Regular educational seminars and workshops
• One-on-one counseling sessions with MS specialists
• Printed and digital educational materials
• Online resources and webinars
• Peer support programs

These resources cover a wide range of topics, from understanding MS and its treatments to strategies for managing symptoms and maintaining quality of life.

Self-Management Tools and Strategies

In addition to medical treatments, the MS Center emphasizes the importance of self-management in MS care. They provide patients with tools and strategies to take an active role in managing their condition.

What self-management techniques are recommended for MS patients? Some key strategies include:

• Stress management techniques such as mindfulness and relaxation exercises
• Exercise programs tailored to individual abilities and needs
• Cognitive training exercises to maintain mental sharpness
• Nutrition guidance for optimal health with MS
• Fatigue management strategies

By empowering patients with these self-management tools, the MS Center aims to improve overall health outcomes and quality of life for individuals living with multiple sclerosis.

Multiple Sclerosis Center | Johns Hopkins Neurology and Neurosurgery

Experts at the Johns Hopkins Multiple Sclerosis Center provide targeted diagnosis and treatment for people with multiple sclerosis (MS). We know every person’s experience with MS is unique, so we design treatment plans that match each patient’s needs, lifestyle and health concerns, aiming to offer the right treatment at the right time. One of the largest clinical and research MS centers in the world, our center combines cutting-edge technology and research with a patient-first approach to care, with the ultimate goal of curing this disease.

Learn More About:

Our Team | Approach | Appointments | Clinical Trials | Patient Resources | Donate

Request an Appointment

410-614-1522

Our Approach to MS Treatment

We believe in a team approach. In addition to providing a comprehensive neurological evaluation and interpretation of MRI studies, we involve nursing, physical therapy and social work assessments as needed. This coordinated, comprehensive, multi-specialty approach helps us provide an accurate diagnosis, quality patient care and an effective treatment plan to help you manage MS long term.

• 
  

  
  
  

  Years of studying retinal scans, brain MRIs and clinical characteristics from people with MS have allowed us to develop a system of personalized assessment and monitoring of MS that helps us anticipate and prepare for changes in your condition. Our evaluation and testing methods include:

  • Innovative diagnostic tests that help us precisely identify your type of MS
  • Imaging tests
  • Lifestyle assessments
  • Reviews of your medical history
  • Ongoing genetic and blood tests




• 
  

  
  
  

  A simple imaging test of your retina – the light-sensitive tissue that lines the back of the eye – allows us to identify the likelihood of rapid disease progression. The test, called optical coherence tomography (OCT) may also help determine your best course of treatment.

  Ongoing genetic and blood tests may also help predict who is at risk for future disability. By partnering with our team, the knowledge gained from your case helps provide even better treatment for future patients.




• 
  

  
  
  

  As leaders in both patient care and biomedical discovery, we provide the highest level of research-based, personalized care. Our team will create a personalized MS treatment plan that may include:

  • Managing MS flare-ups and accelerating recovery with the help of steroids and other medications.
  • Reducing the frequency and severity of MS flare-ups and treating worsening MS with beta interferon, glatiramer acetate and other FDA-approved drugs and therapies.
  • Managing the variety of physical MS symptoms and mental health implications with medications, physical and occupational therapy, rehabilitation psychology, and working closely with specialists in other fields.

Patient Resources

Appointments and Referrals

Your fist visit will be at the Johns Hopkins Outpatient Center. Our team may refer you to other Johns Hopkins specialists for consultation or testing.

• 
  

  
  
  

  To schedule an appointment at the Johns Hopkins Multiple Sclerosis Center, we will need the following:

  • Recent medical records
  • Reports of any MRI testing and other radiology testing
  • A list of current medications
  • Physician referral
  • Lab reports
  • Any other relevant records

  Please submit the above information to our Referral Coordinator, who will assist with scheduling:

  Referral Coordinator
  
  600 N. Wolfe Street
  
  Pathology 627
  
  Baltimore, MD 21287
  Phone: 410-614-1522
  Fax: 410-367-3212




• 
  

  
  
  

  We recommend that you contact your insurance company to verify your benefits. We suggest confirming coverage for radiology, lab work and other services you may need, such as psychiatry and physical therapy.




• 
  

  
  
  

  • Original (or copies) of any MRIs of both the brain and spinal cord
  • Any recent test results that have not already been sent to us — some examples may include visual evoked potentials (VEP) or lumbar puncture (spinal tap) results
  • A list of medications you use, including doses, start date, ordering physician and reason for taking the medication
  • Completed new patient packet that we will send to you, including:
  • New patient questionnaire
  • Symptoms check list 90 (SCL-90)
  • Sickness impact profile questionnaire (SIP)




• 
  

  
  
  

  On certain days, we have a representative from the National MS Society DC-Maryland Chapter in our clinic to answer questions about the programs and services provided by the society. If you wish to meet with the representative, please notify our staff during your appointment. If you are unable to meet with the representative during your appointment or would like additional services provided by the MS Society, please contact them directly.

Support the Johns Hopkins MS Center

Great progress has been made in the last decade in developing new treatments for MS. We are confident that future research will yield new breakthroughs and hope for people with MS. At Johns Hopkins, we strive to bring scientific research and discovery into clinical services to improve the lives of all patients. Our research continues thanks to support and generosity of people like you.

Donate Online

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Multiple Sclerosis | University of Miami Health System

Multiple Sclerosis (MS) affects your central nervous system – the brain, spine and optic nerves. When you have MS, your body’s immune system attacks nerve fibers, which are similar to electrical wiring. When this wiring is damaged, your brain cannot properly deliver messages to the rest of your body. Therefore, the disease can affect your entire body, from memory issues and fatigue to the ability to walk or see.

The disease varies in its severity; the mild cases sometimes go undetected while more severe MS may reduce longevity. There are four general “disease courses” that many patients go through. Knowing which course or type of MS you have can help you receive the right type of care.

1. Relapsing-Remitting – you experience spans of time where symptoms may be light or you may not experience symptoms at all. Later, you may get “flare-ups” or strong symptoms for a span of time lasting from days to weeks.
2. Secondary-Progressive – your symptoms get progressively worse without any periods of remission.
3. Primary-Progressive – you do not have any distinct periods of remission.
4. Progressive-Relapsing – you may progressively get worse, but also has periods of time when your symptoms suddenly worsen.

The causes of MS are not yet known but scientists theorize that it is the result of a virus or autoimmune condition in which the body becomes allergic to itself.

Tests

The neurologists at the UHealth Department of Neurology Multiple Sclerosis Center of Excellence are experts in the field of MS and can help you to reach a diagnosis quickly and accurately.

MRI
The purpose of an MRI is to look at images for evidence of damage in the brain or spinal cord, such as a lesion (or white spot) on the brain.

Lumbar Puncture
This is a diagnostic study to test the cerebrospinal fluid to help diagnose certain health conditions such as Multiple Sclerosis.
While people with cystic fibrosis initially make some – but not enough – insulin, by the time they are adults, more than half of the patients have cystic fibrosis-related diabetes. Blood glucose and other tests can help diagnose this type of diabetes.

Laboratory Testing
The purpose of specific laboratory tests is to rule out conditions that mimic Multiple Sclerosis.

Treatments

Modifying Therapies
Disease modifying therapies are just that – therapies that change the course of your MS and slow the progression of the disease. There are more than 10 different therapies available today and that number is growing. These medicines may be pills, shots or even intravenous (IV) infusions, each with their own benefits and side effects.

Symptomatic Treatments
Symptomatic treatments address the actual symptoms associated with MS. This is a disease that can affect your entire body and different symptoms may come and go. Our medical team can customize your treatment plan to address your unique symptoms. A physical therapist can help you with exercises or stretching that will increase your movement or decrease your pain. A urologist can help prescribe medication for bowel incontinency. A neuropsychologist can help with fatigue or depression issues.

Why Choose UHealth?

Our Multiple Sclerosis Center of Excellence is dedicated to providing the best in diagnostic tools and comprehensive care to our patients. We are not just a team of neurologists – we believe in providing our patients with a multi-disciplinary approach through highly specialized, expert care from our:

• Physicians
• Nurses
• Occupational therapists
• Physical therapists
• Speech therapists

Center for comprehensive MS care. The Multiple Sclerosis (MS) Center of Excellence is a National MS Society affiliated program which offers services in Downtown Miami, Coral Gables, and Boca Raton. Patients by a medical team of MS experts – MS neurologists, Nurse Practitioners, Nurses, Medical Assistants and Clinical Patient Representatives to help meet each of your needs.

State-of-the-art facilities. You will have access to better diagnostic tools to facilitate early diagnosis and treatment to help reduce long-term disability. At our infusion lab, you can receive intravenous drug therapy and neurological imaging that uses MRI to track the disease.

Our commitment to our patients. We are focused on your specific needs. That is why we insist on doing everything possible to establish and enhance a strong quality of life for our MS patients and their families.

Education and empowerment. We empower our patients and their families to learn about and take charge of their treatment by educating themselves. We provide extensive resources for effectively managing MS and its symptoms and we encourage our patients to live life to the fullest, including working and remaining active in their communities.

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