How do fibromyalgia support groups benefit patients. What services do fibromyalgia resource centers offer. Where can individuals with fibromyalgia find comprehensive care and support. How are support groups evolving to better serve the fibromyalgia community.

The Importance of Fibromyalgia Support Networks

Fibromyalgia, a chronic condition characterized by widespread pain and fatigue, affects millions of individuals worldwide. For those living with this challenging disorder, support networks play a crucial role in managing symptoms and improving quality of life. Support groups, both face-to-face and online, provide a platform for patients to connect, share experiences, and access valuable resources.

While many individuals have found solace in these support networks, others report difficulty in accessing or attending such groups, particularly when symptoms are severe. This highlights the need for diverse support options that cater to varying needs and abilities within the fibromyalgia community.

The Fibromyalgia Care Society of America: A Comprehensive Approach

The Fibromyalgia Care Society of America (FCSA) has emerged as a leading organization dedicated to improving the lives of those affected by fibromyalgia. Their approach focuses on three core service areas:

1. Centers of Excellence
2. FibroCares
3. Empowerment Groups

This multifaceted strategy aims to address the complex needs of fibromyalgia patients while also tackling the lack of education and coordinated care within the medical community.

Centers of Excellence: Revolutionizing Fibromyalgia Care

The concept of Centers of Excellence is not new in the medical field, having been successfully implemented for various conditions such as cancer and cystic fibrosis. The FCSA is adapting this model to create specialized facilities for fibromyalgia care.

What sets FCSA Centers of Excellence apart?

• Multidisciplinary teams with up-to-date education on fibromyalgia care
• Comprehensive services including nutrition, holistic care management, physical therapy, and mental health support
• Peer-to-peer support programs
• Accessibility for underinsured or uninsured individuals
• Collaborative approach among experts in neurology, mental health, and therapy

These world-class facilities aim to provide the highest standard of care for fibromyalgia patients, regardless of their financial situation. The FCSA is currently accepting applications for their Center of Excellence program, which will initially launch with virtual supportive services before expanding to physical locations across the country.

FibroCares: Addressing the Practical Needs of Patients

Recognizing that fibromyalgia affects more than just physical health, the FCSA has developed the FibroCares program to provide concrete support for patients in various aspects of their lives. This innovative approach offers a range of services designed to improve overall quality of life for those living with fibromyalgia.

What services does FibroCares offer?

• Fresh food and nutrition support
• Employment assistance
• Respite care
• Individualized support through a dedicated hotline
• Volunteer assistance for household tasks
• Emergency food and rent support
• Referral-based care for various needs

By addressing these practical concerns, FibroCares aims to alleviate some of the stress and anxiety that often accompanies a fibromyalgia diagnosis. The program recognizes that effective management of the condition extends beyond medical treatment to encompass various aspects of daily life.

Empowerment Groups: A New Approach to Support

Traditional support groups have long been a staple of chronic illness management. However, the FCSA has identified limitations in the conventional model and has developed a revolutionary approach to group support for fibromyalgia patients.

How do FCSA Empowerment Groups differ from traditional support groups?

• Led by trained cognitive behavioral therapy facilitators
• Structured sessions with clear goals and objectives
• Focus on providing tangible tools and concrete responses to challenges
• Incorporation of cognitive behavior therapy principles
• Emphasis on empowering participants to actively manage their condition

This innovative approach aims to address the shortcomings of traditional support groups, which often focus primarily on emotional support without providing actionable strategies. By combining the benefits of peer support with evidence-based therapeutic techniques, FCSA Empowerment Groups offer a more comprehensive and effective support system for fibromyalgia patients.

The Evolution of Fibromyalgia Support: From Awareness to Action

As our understanding of fibromyalgia grows, so too does the approach to supporting those affected by the condition. The initiatives developed by organizations like the FCSA represent a shift from merely raising awareness to actively empowering patients with the tools and resources they need to manage their condition effectively.

How has fibromyalgia support evolved in recent years?

• Increased focus on multidisciplinary care
• Integration of holistic approaches alongside traditional medical treatments
• Greater emphasis on addressing the social and economic impacts of the condition
• Development of specialized centers and programs dedicated to fibromyalgia care
• Incorporation of technology to provide virtual support and resources

This evolution reflects a growing recognition of fibromyalgia as a complex condition that requires a comprehensive approach to care and support. By addressing not only the physical symptoms but also the emotional, social, and practical challenges faced by patients, modern support systems aim to improve overall quality of life for those living with fibromyalgia.

Overcoming Barriers to Access: Making Support Accessible to All

While the development of comprehensive support systems represents a significant step forward in fibromyalgia care, challenges remain in ensuring that all patients can access these resources. Many individuals with fibromyalgia face barriers to participation in support groups and accessing specialized care, particularly when symptoms are severe.

What strategies are being employed to improve access to fibromyalgia support?

• Development of online support communities and virtual resources
• Implementation of telehealth services for remote consultations
• Creation of mobile apps for symptom tracking and self-management
• Offering flexible scheduling options for support group meetings
• Providing transportation assistance for in-person appointments
• Ensuring financial assistance programs for those unable to afford care

By addressing these barriers, organizations aim to create a more inclusive support network that can reach fibromyalgia patients regardless of their location, financial situation, or severity of symptoms. This commitment to accessibility is crucial in ensuring that all individuals affected by fibromyalgia have the opportunity to benefit from the latest advancements in care and support.

The Role of Education in Fibromyalgia Support

Education plays a vital role in improving outcomes for fibromyalgia patients. This includes not only educating patients about their condition and management strategies but also raising awareness among healthcare providers, employers, and the general public.

How does education contribute to better support for fibromyalgia patients?

• Empowers patients to advocate for their needs and make informed decisions about their care
• Helps healthcare providers stay up-to-date on the latest treatment approaches
• Increases understanding and empathy among family members and caregivers
• Reduces stigma and misconceptions about fibromyalgia in the workplace and society
• Facilitates the development of more effective policies and support systems

Organizations like the FCSA are at the forefront of educational efforts, providing resources and training for both patients and healthcare professionals. By fostering a better understanding of fibromyalgia at all levels, these initiatives aim to create a more supportive environment for those living with the condition.

The Future of Fibromyalgia Support: Innovations on the Horizon

As research into fibromyalgia continues to advance, new approaches to support and treatment are emerging. These innovations hold promise for improving the lives of those affected by the condition and may shape the future of fibromyalgia care.

What emerging trends are shaping the future of fibromyalgia support?

• Personalized medicine approaches tailored to individual patient profiles
• Integration of artificial intelligence for symptom prediction and management
• Development of new pharmacological treatments targeting specific aspects of fibromyalgia
• Expansion of complementary and alternative therapies with proven efficacy
• Increased focus on preventive measures and early intervention strategies
• Collaboration between patient advocacy groups and research institutions to drive innovation

These advancements suggest a future where fibromyalgia support becomes increasingly sophisticated and tailored to individual needs. By staying at the forefront of these developments, support organizations can continue to evolve their services to provide the most effective care possible.

As we look to the future of fibromyalgia support, it’s clear that a multifaceted approach combining medical care, practical assistance, and emotional support will be key to improving outcomes for patients. The initiatives developed by organizations like the Fibromyalgia Care Society of America represent a significant step forward in this direction, offering hope and empowerment to those living with this challenging condition. By continuing to innovate and adapt to the changing needs of the fibromyalgia community, support networks can play a crucial role in enhancing quality of life and fostering resilience among patients.

SERVICES — Fibro.org

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The Fibromyalgia Care Society of America is committed to three core service provisions to systemically impact the lives of those living with fibromyalgia while also addressing the lack of education and coordinated care within the medical community. Our three service areas include: Centers of Excellence, FibroCares and Empowerment Groups.

The Center of Excellence model is not new to the care of diseases ranging from cancer to cystic fibrosis. The approach is simple: work with leading medical colleges and teaching hospitals throughout the country to offer elite multidisciplinary care. As such, the FCSA is currently working to design an innovative model to develop the standards of care that will be utilized to care for those living with fibromyalgia. The FCSA will launch its Center of Excellence Program with dedicated virtual supportive services that will offer training and coordinated care to individuals across the country. The program and initial facility will be the model replicated throughout the country in subsequent years. At an FCSA Center of Excellence you can expect to find a team of care professionals who have the most up-to-date education on the care of fibromyalgia. The care team will include nutritionists; holistic care management, physical therapy, mental health, peer to peer support and additional services. Most importantly, individuals who are underinsured or have no insurance will be able to receive care and support regardless of their financial capabilities.

At these world-class facilities, patients will benefit from expert neurologists, mental health specialists, therapists, counselors and other professionals who have deep experience working with families affected by fibromyalgia and who work collaboratively to help families plan the best fibromyalgia care program.

We are now accepting applications on a rolling basis-Click here to apply.

An estimated 4-12 million+ people are living with fibromyalgia. Current services available offer support groups and limited medical care. Many individuals living with fibromyalgia battle with anxiety and depression associated with not being understood by their family, friends and employers. FCSA’s FibroCares program will offer these individuals concrete supports such as help around the house through volunteers, employment counseling and placement support, emergency food and rent support, a dedicated hotline managed by a trained professional who can help them navigate the options available to them and a host of other referral based care.

FibroCares is an innovative approach to caring for the community which offers a host of services such as:

• Fresh Food/Nutrition

• Employment Assistance

• Respite Care

• Individualized support through a hotline

Donate to our Fibro Cares Fresh Food Program and help us bring food justice to families affected by fibromyalgia!

Traditionally, support group services are offered to help individuals cope and understand a diagnosis. The reasoning, based on data that is over 30 years old, suggests that these groups help individuals address their fears and concerns in a group setting that can be peer-led or led by a social work professional. While support groups are designed to support cognitive reflection individual often feel that support groups are only effective during the season but are not provided with tangible tools to concretely respond to their concerns.

In response to the minimally effective existing support group model, the FCSA has launched a revolutionary approach to support groups utilizing the principals of cognitive behavior therapy and group therapy sessions to offer attendees a concrete response to the emotions and challenges they are facing as a result of living with fibromyalgia. Each group is lead by a trained cognitive behavioral therapy facilitator who designs each topic to be addressed throughout the course of several months. At the beginning of each session, the goal and objectives of each 60 minute session will be clearly stated and the facilitator works to ensure each member is able to respond to the goals and objective – most importantly, the facilitator works to ensure each individual is empowered utilizing the specially designed approach.

Share your information below to obtain additional information and updates about our services.

Fibromyalgia – Support groups for fibromyalgia

The people that we spoke with were asked if they had accessed any support groups for people with fibromyalgia. Most had accessed some support networks either face to face or online, although some people said they weren’t aware of any groups and that attending a face to face group could be challenging if they were feeling too ill or if the meeting venue required a lot of travel.

Views about meeting or talking to others were mixed. Most people felt it was important for healthcare staff to signpost people to support groups, but they recognised it’s not for everyone, and you may find people have little in common with you. Some preferred one-to-one chats; some liked to read other people’s posts on forums but not to share their own; and some preferred groups organised by health professionals or with invited professional guest speakers. This might depend whether people were hoping particularly for practical advice, or for social and emotional support, or just friendship and someone to share a laugh and a joke with. They might need different things at different stages of their illness.

Jacqueline’s support group hosts meetings where health care professionals attend – “it’s us that’s educating them you know.”

Jacqueline’s support group hosts meetings where health care professionals attend – “it’s us that’s educating them you know.”

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The wee support group I was talking to you about there, I think it’s come back to me, we all had fibro, admin, the whole lot of us and we’re getting it very, very hard to keep it together, so we put a request out to see what family members that understand it, fibro, I don’t think there’s anybody out there can understand it unless they’ve actually gone through it, but have family experience of it. So we got six, seven on board and the wee group is running now and helping so many, and also helping the health service as well you know.

So that would be why we would be educating the OTs and they come along to the monthly meeting now, the, fibro is a disability and, they come to the monthly meetings, not every, not every monthly meeting, we’ll invite them and then we’ll invite the consultants, the GPs, the nurses, support workers, right across the whole field we will, we will you know, it’s us that’s educating them you know.

And with the support group, how did you find out about the support group?

I found out about on, in the local paper, and, it was started up from a girl who god, had ME and fibro, and she had to give up her career, she had to give up with two doctors in it as well, that had to give up their practice, and I just went out, I just felt as if, and the type as well “If you don’t feel like getting dressed come in your pyjamas and come with your quilt”, and that’s exactly what happened, there’s that many sick people there you know, and quite unusual, and I just looked around and I goes, “My god, something has to be done here, something has to be done”.

So that was my first, now I don’t go out every week, in fact it’s been quite a while from I was out because we have it online and you can watch it online you know, but it, the amount, like it’s gone from, from 220 to 1,700 members of people, and you see all this about, you’re constantly seeing this about, “Doctors want me to get out”, doctor that wouldn’t accept fibro, doctor this, it’s terrible, it’s absolutely terrible you know, it shouldn’t be happening.

And how do you feel about this support you know, from your group?

Absolutely fantastic. I think it is absolutely brilliant and I’d be a very, very dark place without it.

There were a lot of positive views about the support people got from communicating with others with fibromyalgia. Interacting with others seemed particularly helpful for reminding people that they were not alone and they felt that other people with fibromyalgia can really understand what they’re going through. They said that support networks can also provide useful tips on how to manage symptoms. ‘Comparing notes’ was a common theme.

Alexis finds her support group “hugely helpful” and says “she couldn’t cope without it in all honesty.” Jacqueline feels that her group is helping so many people and that she would be “in a dark place without it.” Martina found a support group for people with ME and fibromyalgia and says “I didn’t have to explain how I felt each day to them because they understood.”

Alexis describes meeting other people with fibromyalgia on her self-management course as being “a complete life-saver.”

Alexis describes meeting other people with fibromyalgia on her self-management course as being “a complete life-saver.”

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And having that support group has been really necessary and helpful for me because you know, if I’m having a day where things are just overwhelming or I’m tried of explaining something, I can go to those people and just you know, it’s an outlet and just saying you know, “Oh, for goodness sake, this has happened again”, and they get it, and we all do support and care about each other and you know, yeah, we’re there in the bad times but we also celebrate the successes that we’ve had, so it can be, “Oh you know, I’ve been trying this treatment”, or you know, “This type of massage or something and it’s been really helpful for me”. So that for me has been hugely helpful.

And having this kind of support of people you know, who have you know, who have fibromyalgia and as you say, understand without you needing to explain really, what does it mean to you to have this kind of support in your life?

I don’t think I’d cope without it in all honesty, I think before I met the people at the, the self-management course I felt so alone. And it wasn’t even that you know, I, I knew people, a couple of people in my life who have fibromyalgia, but they’re not, they weren’t people that I was especially close to or felt like I, or you know, they were also dealing with a lot at the time or you know, I didn’t want to go to them and be like, “Here’s all of my problems as well as what you’re dealing with”.

So I think before that point I was really struggling with getting my head around it and yeah, I, but there were a lot of bad mental health days I think before I met those people. So yeah, actually having, having met people in person and having discussions about what it’s like yeah, a complete life saver for me, it’s really necessary.

Elsie and a group of her friends with fibromyalgia have set up their own “amazing support mechanism”. They meet up regularly and each have a phone buddy who they can contact for support. They started the group themselves after feeling that “there was nothing much being done” to support those living with this condition in their area. Karen is part of a support group for ME and fibromyalgia. She feels that “the amount of the support that floods in just lets you know that you’re not on your own.”

Karen is part of a support group for ME and fibromyalgia. She feels that “the amount of the support that floods in just lets you know that you’re not on your own.”

Karen is part of a support group for ME and fibromyalgia.

She feels that “the amount of the support that floods in just lets you know that you’re not on your own.”

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But they, they help ME and fibro patients. If someone has a question, “Where is the best rheumatologist? Who did you go and see?” you know, “Who is the best private person to go and see?” you know that way she started off on her own and she now has a group of volunteers helping her and there is a, a well renowned doctor in, I think it’s in [a big city] who was on our last monthly Zoom meeting, because we obviously can’t meet up anymore we have monthly Zoom meetings, and he was included and, he’s a doctor for infectious diseases and control and it’s a long, long title. But we got a lot of really good information from him, which, who is a doctor that you would have to pay privately to see and we got to ask him questions for free you know. So setting things like that up for us, I mean it’s you know, you can’t put a price on that, and that’s a charity so you know, fundraising.

What kind of difference has that group made to you?

It’s given me the support that I need, information that I need. I mean I can ask one person, “Does anybody have this as, a symptom of fibro?” and they’ll say, “Yes”, or, “No”, and I’ll know, “Okay, that’s not my fibro, that’s something else”, or they’ll, or I’ll ask, “Does anybody know a good place to go for a sports massage or ?” anything really and someone will have the answer, and if they don’t have the answer they’ll go and find it.

They offer support, when you’re just having a really bad pain day they understand and you go on and you put a post on and the amount of the support that floods in just lets you know that you’re not on your own. Even though you may be one of the younger members you’re not on your own because my mum is a member as well but she isn’t as active on the Facebook page. She did come to the monthly meetings with me, we went together, and that was something that helped us both because a lot of the things my mum didn’t understand about fibromyalgia either.

Kristie has started her own Instagram page and thinks people don’t really understand unless they have fibromyalgia themselves.

Kristie has started her own Instagram page and thinks people don’t really understand unless they have fibromyalgia themselves.

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I don’t really have, much of a support I’d say, in terms of people that understand what I’m going through apart from, some people that I’ve met on the internet [smiles]. So I do have a group of, women that I speak to regularly, that have HS and, some of them have fibro as well so it’s good to speak to people that have, have the same, issues that I have, because they understand more. I just don’t think anybody really understands if they don’t have it [smiles], so.

Can you tell me a bit about this group, of you know, women you, how did you get in contact with them and is it just online or, yeah?

Yeah, it is just online for the time being because obviously we can’t meet.  But I started an Instagram page, for my HS when, just before Christmas I think and I, it was just really to probably make myself feel better at first but it’s sort of grown into this, page that I get in contact with, other people. We’re now, I’m now in this group of women that, one of the ladies is a, has a business that has to do with HS, because I have a job that’s beneficial for that, I help her out, we have another woman who’s been on TV with it who’s got quite a good following, and yeah, we have a really good sort of group. And yeah, it is online for the time being.

There is the one lady that lives near me actually, so we’ll probably meet up when we can [laughs], but obviously now it’s all online or on the phone [laughs].

What does it mean to you to have you know, this support?

Oh, it means so much [smiles] like because, well not, when, we’re quite positive with each other, we don’t, it’s not like a pity party of women with conditions [laughs] that we just like moan all day, we’re really good at like keeping our spirits up and you know, helping each other with information. Yeah, well if someone’s read, read like a journal or an article or something then we’ll pass it on or if someone’s heard of something, that helps we’ll pass on that information. It’s good, it is really good, positive, uplifting group of people.

However, several people described less positive interactions with others. They described some groups (particularly some online forums) as being “pity parties” with “too much moaning” from “people in their own little fibromyalgia world”, “competitive” and/or “depressing”, and were keen to avoid these. Susan joined a fibromyalgia group on Facebook in the past. However, she didn’t feel it was what she needed and so left – explaining that “I need positivity”. For Helen, group interactions need to be positive and informative, otherwise they can potentially “drag you down”.

Catherine doesn’t think she would gain much from talking to other people with fibromyalgia and doesn’t want “negative stuff.”

Catherine doesn’t think she would gain much from talking to other people with fibromyalgia and doesn’t want “negative stuff.”

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I don’t think it would help me. I would happily go and listen to other people’s… [shaking head] but talking about my condition isn’t going to help me feel better about it. It’s not going to cure it, talking about it just reminds me that I have this and my coping mechanism is to not think about it and not talk about it. But, I could go to these groups but as a listener as opposed to talking about me. Is that selfish? Hmm…

Sometimes it’s quite nice to talk about something without it becoming a discussion or a competition. You’ve got a sore arm, oh, well, both my arms are sore. How sore are yours? Well, they’re sore. Oh, well, mine are worse. Now, that to me is not, that’s not a positive way to deal with something. I think if it’s… if someone just wants to talk about… I’m a good listener, you know, I’m quite happy to sit and listen to people.

I’m not saying that I’m perfect because I sometimes do interrupt, I think, “Oh, I’ll chip this one in,” but I would go and listen to other people talking and be quite happy to do that. But for myself, I just don’t think I would gain anything, talking about it to other people.

I think it would just endorse the fact for me, something that I’m trying to live with… I would hate to think, to go along to one of these groups and think, “I’m dealing with this really well, right I’ve got this, I’ve got this, I’ve got this. I’m taking this medication, that’s fine. I’m able to go to work, I’m able to…” blah, blah, blah, and then go along and hear somebody saying, “Oh, well, I’ve got this and oh I don’t go out anymore, and then oh and I can’t do this and I can’t do that. I’m in this pain, I’m in that pain.”

I don’t want negative stuff, I don’t want to be sitting there, thinking, “Oh my goodness, am I taking my illness too lightly?” Should I be thinking, “Oh my goodness, I’m really ill, I maybe shouldn’t be going to work, I maybe, I maybe should be lying in my bed in the morning, maybe getting up at lunchtime and maybe not even doing the gardening anymore because it’s too sore.” Does that make sense? I mean I… yeah.

Chrissie found that some of the Facebook groups were too competitive and had “to step away.”

Chrissie found that some of the Facebook groups were too competitive and had “to step away.”

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Because although the Facebook groups are sometimes good it, often it’s very much a case of like my horse is bigger than your horse, my problems are bigger than yours rather than someone, so I would go on there and say, “I’ve had this particular sensation here, has anyone else experienced it, and if so, what did you do to ease it?” and some people would say, “Try this, this, this”, a lot of things, suggested were things like Kratom which obviously is illegal in the UK, and then often CBD as well is also mentioned, and then other people would comment being like, “Oh, I’ve had that sensation everywhere for this many years, so I therefore, you don’t have to worry about anything because I’m worse than you are”, and it always, it felt like it’s a competition and it shouldn’t ever be seen as a competition for who’s worse than who, it should be what it says on the tin, a support group.

So I had to sort of step away from a few of them because there was this weird competition of people feeling better than others because they’re in their opinion in a worse place than others. And I think because I, and at the time was still working, they were like, “Well obviously not that bad because she’s still got a job”, and not taking into consideration that I live in [the city] and I live in, like I live in a flat share but I live in [the city], I have to work to pay the rent, yeah.

Rachel preferred the support from her gym group with people with a range of long term conditions, and Audra just didn’t want to see people with really bad symptoms.

The composition and focus of any support group was also important to some people in order for it to feel relevant to them. Martin prefers to attend his local pain group as they provide good talks about chronic pain. He attended a fibromyalgia group in the past, but he describes it as being more focussed on complementary therapies and “scarf/candle parties” and that this wasn’t for him. Others described groups as being too cliquey or having a few domineering personalities. Rachel felt that she was the youngest person in her group. She also didn’t feel as “unwell” as others and so didn’t really feel like she fitted in.

Martin prefers his local pain group to the one specifically for people with fibromyalgia.

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Martin prefers his local pain group to the one specifically for people with fibromyalgia.

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Well it was actually through the fibromyalgia group that I heard about the [local] pain group. It was somebody that went to the pain support group that I heard through. Originally, they do a, like a social thing apart, different from the group you go to, like a, you go to the [university health campus] building and it’s not a formal, I started going to that before going to the [street name] one at the [regional health centre] in [the city].

What made you, change over to the groups? Was there a specific reason?

I think, a lot of the things they had the fibro group was alternative therapy like, magnetic therapy and say Reiki, which I’m more scientific sort of minded. And they had, they started having things like scarf parties, candle parties, we would have people talking about teddy bears, and I felt it was more women orientated because it was about 95% women there and I just felt, and they weren’t having as interesting talks as …

What do you feel like, is the ideal support to receive in your eyes or experience for you?

I’m not too sure. It’s difficult to say. It is seen as a, well generally a woman’s, I’m not too sure the percentage like, it’s about 80%/90% women sort of thing, so. It’s the same at the [local] pain support group, I’m, sometimes I’m the only guy there [laughs], but it’s more general pain, and, which makes it better.

Rachel felt that she was the youngest person in her group. She also didn’t feel as “unwell” as others and so didn’t really feel like she fitted in.

Rachel felt that she was the youngest person in her group.

She also didn’t feel as “unwell” as others and so didn’t really feel like she fitted in.

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I think after a while I kind of sat there and I thought, ‘Maybe I’m not actually that ill.’  And I know that my fibromyalgia is quite mild compared to everyone else, but I was sitting there, going, the fact that seeing other people’s experiences is making me feel that I don’t deserve to take part in these things, I think made me feel a little, I think that made me feel worse. So I thought, you know what, I’m not getting anything out of these forums, it’s not having a significant impact on my sort of mental health, but it’s not helping me. So I thought, you know what, it’s not something that I feel would be beneficial to me, so I kind of came out of that in terms. I know it really helps some people, but for me, it’s just not… I just didn’t feel like I… I wouldn’t say I didn’t fit in, [shaking head] so no one was specifically there saying, ‘No, you don’t belong here,’ but I just felt, you know what, I don’t think me sharing anything is going to help anyone massively.

And then a similar sort of thing happened with the physio support group thing that I went to at the hospital, so… I think initially about 20… there were about 20 people at the group, and the numbers dwindled as time went on, sort of dropped down a little bit. But I was the youngest person there, I think, probably by about ten or fifteen years. I did have another participant or patient within the group that did say to me, ‘You’re far too young to be here,’ and I was sitting there, going, ‘Uh, well, I don’t believe that fibromyalgia chooses an age for someone to be ill.’

I appreciate that, you know, it’s more common in women and it’s more likely to be, sort of, you know, over a certain age, but the fact that I was sitting there, going, ‘But surely the fact that I’m sitting here,’ you know, ‘I’ve just turned 30 and I’m sitting in this group, surely a little bit of a, oh, blimey, actually this has opened my eyes to the fact that it doesn’t pick and choose who’s going to get it,’ [nodding] would make you feel that you would want to be a bit more kind of inclusive.

So I think that’s one thing that just really stuck out for me, was the fact that it was, ‘Oh, you’re far too young to be here,’ I thought, ‘Well, no I’m not, because if I wasn’t meant to be here, I wouldn’t have been invited in the first place.’  But it was… and I think that kind of set the tone for the group as well. Again, it was it was nice to be there and it was nice for me to… you know, I felt comfortable enough to be able to talk about my experiences and my understanding of things and how it’s impacted me and things like that, but again, it was… people seemed a lot more unwell than I was, you know, there were a lot of people that couldn’t sit down for a really long period of time, they had to keep moving, [gestures with hand] they were using sticks, had to wear dark glasses because they were so hypersensitive to light. I just sat there and again, I felt a bit, you know, not like a fraud but just again, but just again I was sitting there, going, ‘Do I really fit in within this group?’

Many of the interviews took place during the COVID-19 pandemic, which meant face to face support group meetings had to stop. Debbie described how her group switched to Zoom meetings.

Debbie’s support group switched to Zoom during the COVID-19 pandemic. It was good to keep in touch but she missed the social and mental health support of face-to-face meetings.

Debbie’s support group switched to Zoom during the COVID-19 pandemic. It was good to keep in touch but she missed the social and mental health support of face-to-face meetings.

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Yeah, because obviously there was nothing opened the, the group that I go to in [the city] obviously had to be cancelled and that’s where I get most of my support for fibro since that though we have moved to Zoom, which is so much easier because then we go on and we’ll have a chat on there. So, the meetings once a month and they still have the specialists who come on and they join in the Zooms, so it’s really, it’s really quite good that it’s still there. But it took a while to get that set up. and obviously not being able to see people or go out and have a coffee, go on to my best friend’s house, I wasn’t able to do that, you know, and all those wee things are all for mental health and when I wasn’t able to do it, then my mental health declined, which meant I spent more time in bed again, not just from the ME or for the fibro but also from the depression [touches mouth] yeah and not being able to go and get out in the fresh air and go for a walk, I didn’t want to do it.

Fibromyalgia in adults: symptoms, causes and treatment

Content

• 1 Fibromyalgia: causes, symptoms and treatment in adults
  • 1.1 Fibromyalgia: symptoms, causes and treatment
    • 1.1.1 Symptoms

    9 0005 1.1.2 Causes

    • 1.1.3 Treatment
  • 1.2 What is fibromyalgia?
  • 1.3 Symptoms of fibromyalgia
  • 1.4 Causes of fibromyalgia
  • 1.5 Fibromyalgia: who is at risk?
  • 1. 6 Diagnosis of fibromyalgia
  • 1.7 Treatment of fibromyalgia
  • 1.8 Medicines for fibromyalgia
  • 1.9 Non-drug treatments for fibromyalgia
  • 1.10 Physical iotherapy and massage for fibromyalgia
  • 1.11 Recommendations for patients with fibromyalgia
    • 1.11.1 Pain management
    • 1.11.2 Active lifestyle
    • 1.11.3 Proper nutrition
    • 1.11.4 Social support
  • 1.12 Prevention of fibromyalgia
  • 1.13 Related videos:
  • 1.14 Q&A:
    • • 1.14.0.1 What is fibromyalgia?
      • 1.14.0.2 What are the symptoms associated with fibromyalgia?
      • 1.14.0.3 What are the causes of fibromyalgia in adults?
      • 1.14.0.4 How is fibromyalgia treated?
      • 1.14.0.5 Can fibromyalgia cause disability?
      • 1.14.0.6 Can diet and nutrition affect fibromyalgia?

Fibromyalgia is a chronic disease of the nervous system that causes pain in the muscles and joints. Symptoms of fibromyalgia can include fatigue, insomnia, and depression. The causes of the disease are not fully understood. Treatment for fibromyalgia includes medication, physical therapy, relaxation techniques, and psychotherapy.

Fibromyalgia is a neurological disease characterized by chronic muscle, joint and tendon pain. Pain may be accompanied by soreness, fatigue, and anxiety. Among the causes of this disease, there may be common factors such as genetic, psychological and environmental factors that can lead to its development.

The disease can lead to a decrease in the patient’s quality of life and limitation of his activity. Although fibromyalgia is a chronic condition and can be difficult to treat, there are a number of treatments that can help improve the patient’s condition.

One of the main treatments for fibromyalgia is combination therapy, which includes exercise, medication, psychotherapy, and lifestyle changes.

It is important to know and understand the symptoms of fibromyalgia in order to seek timely help from a doctor who will help to correctly diagnose and prescribe effective treatment.

In this article, we take a closer look at what fibromyalgia is, its symptoms and causes, and treatments that can help reduce pain and improve a patient’s quality of life.

Fibromyalgia: symptoms, causes and treatment

Symptoms

Fibromyalgia is a chronic disease characterized by pain in various parts of the body and increased sensitivity to pain. The main symptoms of fibromyalgia are:

• Muscle and joint pain
• Fatigue and sleepiness
• Digestive problems
• Headaches and migraines
• Depression and anxiety

Causes

The causes of fibromyalgia are not fully understood. However, it is believed that this disease can be caused by several factors:

1. Genetic predisposition
2. Stress and psychological problems
3. Trauma and damage to the nervous system
4. Chemical imbalance in the brain
5. Excessive stress on muscles and joints

Treatment

Treatment of fibromyalgia is aimed at eliminating pain, improving the quality of life, as well as setting the patient to a positive attitude. Several methods are used for this:

• Medication, including pain and anti-inflammatory drugs
• Exercise and regular sports
• Psychotherapy and psychological support
• Alternative therapies such as acupuncture and yoga

What is fibromyalgia?

Fibromyalgia is a condition characterized by muscle and connective tissue soreness. Fibromyalgic pain can occur in different parts of the body, including the neck, back, chest, abdomen, and extremities.

Fibromyalgia is a chronic disorder that usually develops in women between the ages of 30 and 50. There are several hypotheses about the causes of fibromyalgia, including genetic factors, stress, infections, and other medical conditions. However, the exact cause of fibromyalgia has not yet been established.

Fibromyalgia symptoms can vary depending on the severity of the disease, but the most common symptoms include muscle and connective tissue pain, fatigue, restless sleep, headaches, and digestive problems.

Symptoms of Fibromyalgia

Fibromyalgia is a chronic, non-inflammatory disease that is accompanied by general soreness, fatigue, insomnia, and other symptoms. However, symptoms can vary greatly from patient to patient.

In addition, patients often complain of extreme fatigue, insomnia and problems with concentration. Headaches, depression, anxiety, seizures, and even numbness in the arms and legs can also occur.

However, some patients may have only a few symptoms, while others may have more symptoms. In addition, symptoms may vary depending on the time of day, physical activity, and stress.

If you notice any of these symptoms, you should see a doctor for diagnosis and treatment. No matter how sick you feel, fibromyalgia can be managed with appropriate treatment and lifestyle changes.

Causes of Fibromyalgia

Fibromyalgia is a chronic disease with no known cause. However, there are a number of factors that can contribute to the development of fibromyalgia.

• Genetic predispositions. There is speculation that certain genes may be linked to the development of fibromyalgia.
• Neurochemical changes. In people with fibromyalgia, there may be a disruption in the production of neurotransmitters that are responsible for regulating pain threshold.
• Stress. Prolonged stress can increase cortisol levels in the body, which exacerbates fibromyalgia symptoms.
• Diseases of the thyroid gland. Some people with fibromyalgia also have traces of thyroid disease.
• Urogenital infection. It is possible that a urogenital infection may cause fibromyalgia.

These factors, and others, may play a role in the development of fibromyalgia. But due to the complexity of this disease and its unknown etiology, it is difficult to determine which factor or combination of factors is causing the development of fibromyalgia.

Fibromyalgia: who is at risk?

Fibromyalgia is a chronic condition that presents with characteristic symptoms such as muscle and joint pain, fatigue and sleep disturbance. The exact causes of fibromyalgia have not yet been identified, but it is known that certain groups of people are at greater risk of developing this disease.

• Women suffer from fibromyalgia four times more often than men;
• People with rheumatic diseases such as rheumatoid arthritis or systemic lupus erythematosus are also at risk of developing fibromyalgia;
• Stress and anxiety can contribute to fibromyalgia;
• Heredity may also play a role in the development of fibromyalgia.

It is important to note that fibromyalgia can affect anyone, but groups of people are at higher risk. If you have risk factors, you need to pay attention to your health and consult a doctor in a timely manner at the first symptoms.

Fibromyalgia Diagnosis

Fibromyalgia is a disease that is difficult to diagnose. However, there are a number of symptoms that allow you to establish this disease. It should be noted that the disease does not have an exact cause of its occurrence. The processes that occur in the body of a patient with fibromyalgia may be associated with adverse work conditions, stress, or dysfunction of the nervous system.

Doctors diagnose fibromyalgia when several conditions are met. First of all, the patient must provide a medical card, in which all the symptoms of the disease would be noted. The list of “characteristics” of fibromyalgia includes chronic pain, muscle pain, fatigue, and disturbed sleep. The second stage of diagnosis is a general examination of the patient for changes in health – a medical examination, blood tests, urine tests, x-rays and tomography.

Since fibromyalgia is often the cause of many other serious conditions, it is important to recognize it early. Detection of this disease by early diagnosis can prevent the development of complications and more easily prevent the development of diseases that are associated with ineffective treatment of fibromyalgia.

Fibromyalgia Treatment

Fibromyalgia is treated with a variety of treatments, including medication, physical therapy, and lifestyle changes.

• Drug treatment: Anti-inflammatory, analgesic and antidepressants are used as medicines. However, it is worth remembering that this type of treatment is usually not effective enough and may have side effects.
• Physiotherapy: Physiotherapy methods such as massage, muscle stretching, hydrotherapy also help to cope with the disease.
• Lifestyle changes: It is important to learn how to manage your exercise, diet and stress levels. Yoga, Pilates, or aerobics classes can help strengthen muscles and reduce pain levels.

Before starting treatment for fibromyalgia, you should consult with your doctor and develop a personalized treatment plan.

Medicines for Fibromyalgia

Fibromyalgia is a rather complex condition that can cause considerable discomfort and pain. There are various approaches to treating this condition, but drugs are still the main component.

Among the most commonly used drugs for fibromyalgia are analgesics, antidepressants and drugs that improve sleep.

• Analgesics: Some of the most commonly used analgesics for fibromyalgia include paracetamol, ibuprofen and diclofenac. However, if the pain does not improve, then the doctor may provide stronger drugs to relieve the pain.
• Antidepressants: Some antidepressants, such as duloxetine and amitriptyline, may help reduce pain and improve mood in patients with fibromyalgia.
• Sleep medications: Drugs such as amitriptyline and trazodone can help improve sleep quality. Although it is not a direct treatment for fibromyalgia, it can help reduce the pain and fatigue associated with the condition.

When prescribing drugs for the treatment of fibromyalgia, it is important to remember that the outcome is unpredictable and may vary from patient to patient. Every drug can have side effects, so it’s important to follow your doctor’s instructions. In some cases, more intensive therapy is needed and sometimes the greatest success can be achieved with an integrated treatment approach.

Non-drug treatments for fibromyalgia

Fibromyalgia is a disease that, unfortunately, cannot be fully cured. However, with the help of complex treatment, it is possible to achieve stable remission and slow down the progression of the disease.

About a third of patients with fibromyalgia report a positive effect of massage. Massage improves blood circulation, reduces muscle tension and improves sleep.

Patients suffering from fibromyalgia are advised to improve the quality of their sleep. It is important to go to bed and wake up at the same time, avoid strong emotions before bed, and place only elements in the sleeping room that promote calmness and relaxation (for example, eye masks and scented light bulbs).

An equally important treatment for fibromyalgia is psychotherapy. Often patients with fibromyalgia suffer from depression and anxiety. Taking antidepressants can help, but a course of psychotherapy aimed at developing positive thinking and increasing self-esteem can achieve the greatest effect.

Physiotherapy and massage for fibromyalgia

Physiotherapy is an important part of the treatment of fibromyalgia. It allows you to reduce pain, improve the mobility of joints and muscles, improve the general condition of the body. One of the methods of physiotherapy is ultrasound therapy, which improves blood circulation, reduces swelling and muscle spasms. Laser therapy is also effective, which improves tissue regeneration.

Massage can also be helpful in fibromyalgia. It helps to relax muscles, improve blood circulation and slow down the development of osteochondrosis. A gentle massage using light gymnastics, rubbing and kneading techniques is recommended. Massage should be carried out regularly, according to a treatment plan, in order to achieve the maximum effect.

• Electromyostimulation is also a physiotherapy method that helps to reduce pain and muscle spasms. This uses an electric current that generates reflex movements, improves blood circulation and strengthens the muscles.
• Hydromassage is prescribed as an additional method of treatment. It helps reduce fatigue and pain, reduce inflammation. Hydromassage can be carried out both at home and in special institutions, for example, in physiotherapy rooms of doctors.

Advice for Patients with Fibromyalgia

Pain Management

It is important to understand that fibromyalgia is characterized by chronic pain that can be very intense. However, do not despair and be born on yourself, you need to turn to specialists.

It is recommended to set up your own pain management system and apply it in your daily life. For example, you can apply relaxation techniques or learn breathing exercises.

Active lifestyle

Even if you are in pain, this is not a reason to give up an active lifestyle. Do not forget about exercise and sports, which help maintain overall health.

However, you need to remember the measure and choose exercises that will not lead to aggravation of the state of health. It is recommended to consult with a specialist who will help you choose an individual exercise plan for your case.

Proper nutrition

Proper nutrition is one of the key factors in maintaining overall health and combating the symptoms of fibromyalgia. It is recommended to avoid foods that can make the condition worse, such as alcohol, caffeine, and some spicy and fatty foods.

It is important to make sure that the diet contains enough beneficial vitamins and minerals, such as vitamin C, calcium and magnesium, which will help increase resistance to disease.

Social support

Fibromyalgia can have a negative impact on the patient’s quality of life. Therefore, social support is a very important aspect of treatment. It is recommended to communicate with relatives and friends, attend group meetings and keep a diary of observations, which will help collect your thoughts and make decisions about treatment.

Recipes for Fibromyalgia Patients List of foods to avoid0010

• Coffee
• Alcohol
• Fatty and spicy foods
• Smoked meats

Prevention of fibromyalgia

Fibromyalgia is a chronic disease that can be prevented by the following measures:

• Proper nutrition: Excessive amounts of animal fats, red meat, excessive consumption of caffeine and alcoholic beverages should be avoided. It is recommended to consume more fruits, vegetables and healthy fats such as olive oil and avocados.
• Active lifestyle: Regular exercise can help strengthen muscles and reduce body pain. It is worth doing physical exercises that do not put a strain on the joints, such as swimming or yoga.
• Regular rest: A normal sleep pattern will help reduce the levels of stress and fatigue that can cause fibromyalgia symptoms. You can do relaxing activities before bed, such as drinking tea or reading a book.
• Regular check-ups: Regular check-ups by your doctor will help you monitor your health and timely identify various diseases that can cause fibromyalgia symptoms.

By following these precautions, you can significantly reduce your risk of developing fibromyalgia.

Related videos:

Q&A:

What is fibromyalgia?

Fibromyalgia is a chronic disease that manifests itself as pain in the muscles, joints and connective tissues, as well as the nervous system.

What are the symptoms associated with fibromyalgia?

Fibromyalgia symptoms include: muscle pain, joint pain, fatigue, insomnia, headaches, digestive problems, sensitivity to cold and heat.

What causes fibromyalgia in adults?

First of all, risk factors are stress, long stay in one position, injuries and infections. Metabolic disorders, heredity and other factors can also affect the development of the disease.

How is fibromyalgia treated?

Fibromyalgia treatment includes physical therapy, muscle stretching exercises, medications that reduce pain and are not harmful to health, such as tricyclic antidepressants and pain medications. You should also pay attention to nutrition, maintaining an active lifestyle and psychological support.

Can fibromyalgia cause disability?

Rarely, fibromyalgia can become so severe that the person needs a disability. However, in most cases, treatment and a more active lifestyle can manage the disease and maintain quality of life.

Can diet and nutrition affect fibromyalgia?

Yes, diet and nutrition can affect fibromyalgia symptoms. It is recommended to avoid foods containing a lot of sugar, fats and dyes, as well as to give up drugs and alcohol, often improving the general condition of the patient.

Everything you need to know about fibromyalgia

It causes symptoms such as:

• musculoskeletal or muscle and bone pain
• tenderness
• general fatigue
• sleep and cognitive disorders

This condition can be difficult to understand even for medical professionals.

His symptoms mimic those of other conditions, and there are no tests to definitively confirm the diagnosis.

As a result, fibromyalgia is often misdiagnosed.

In the past, some healthcare professionals even wondered if fibromyalgia was real.

This is much better understood today.

Some of the stigma that once surrounded fibromyalgia has eased, but treatment can still be challenging.

Medications, therapy, and lifestyle changes can help you manage your symptoms and improve your quality of life.

You may also have periods of remission when your pain and fatigue decrease.

Fibromyalgia symptoms

Fibromyalgia causes what are now called areas of pain.

Some of these areas overlap with areas of tenderness traditionally known as tender points or trigger points.

However, some of these previously noted areas of tenderness are not included in the areas of pain.

Pain feels like constant, dull pain.

A healthcare provider will consider fibromyalgia if you have musculoskeletal pain in four of the five pain areas listed in the chart. 2016 revision of the diagnostic criteria for fibromyalgia.

Current diagnostic criteria refer to fibromyalgia pain as multifocal pain.

In contrast, the 1990 Fibromyalgia Diagnostic Criteria defines fibromyalgia pain as chronic widespread pain.

In addition, the diagnostic process now focuses on pain severity and areas of musculoskeletal pain.

In the past, the duration of pain was the main criterion for diagnosing fibromyalgia.

Other symptoms of fibromyalgia include:

• fatigue
• sleep problems
• non-restorative sleep, or sleeping for long periods of time without feeling rested
• headaches
• problems with focus or attention
• dry eyes
• rash
• itch
• pain or dull pain in the lower abdomen
• bladder problems such as interstitial cystitis
• Depression
• anxiety

The condition can affect your emotions as well as your physical health.

Fibrofog

Fibrofog or brain fog is a term some people use to describe the fuzzy sensations they experience.

Signs of fibrous fog include:

• blackouts
• concentration difficulty
• vigilance problems

According to a 2015 literature review, some people find the mental fogginess due to fibromyalgia more frustrating than the physical pain.

Fibromyalgia treatment

There is currently no cure for fibromyalgia.

Instead, treatment focuses on reducing symptoms and improving quality of life through medications, self-help strategies, and lifestyle changes.

You can also ask for support and advice.

This may include joining a support group or seeing a therapist.

Fibromyalgia medicine

Medicines can relieve pain and improve sleep.

Common medicines for fibromyalgia include pain relievers, anticonvulsants, and antidepressants.

Painkillers

Fibromyalgia pain can be uncomfortable and constant enough to interfere with your daily life.

Don’t just settle for pain.

Talk to a healthcare professional about ways to deal with it.

If you have moderate pain, one option is to take over-the-counter pain relievers such as:

• acetaminophen (Tylenol)
• aspirin
• ibuprofen (Advil, Motrin)
• naproxen (Aleve, Naprosin)

These medicines can help reduce pain, relieve discomfort, and help you manage your condition better.

They may even help you sleep better.

Many of them also relieve inflammation.

Although inflammation is not the primary symptom of fibromyalgia, you may experience it if you have an associated condition such as rheumatoid arthritis (RA).

Please note that non-steroidal anti-inflammatory drugs (NSAIDs) have side effects.

Caution is advised if NSAIDs are used for a long period, as is usually the case in the treatment of chronic pain.

Opioids are also prescribed for pain relief.

However, research has not shown their effectiveness over time.

In addition, drug dosages are usually increased rapidly, which can pose a health risk to people who are prescribed these drugs.

Tramadol (Ultram) is one of the opioids most closely associated with the relief of fibromyalgia.

However, it is not considered a traditional opioid by some experts and any possible benefits in fibromyalgia may be due to the fact that it is also a serotonin and norepinephrine reuptake inhibitor (SNRI).

According to a 2020 study, there is insufficient evidence to support or against the use of tramadol for fibromyalgia.

More research on opioids is needed.

Anticonvulsants

Pregabalin (Lyrica), an anticonvulsant drug, was the first drug approved by the Food and Drug Administration (FDA) for the treatment of fibromyalgia.

It blocks nerve cells from sending pain signals.

Gabapentin (Neurontin) was developed to treat epilepsy, but it may also help reduce symptoms in people with fibromyalgia.

Gabapentin has not been approved by the FDA for the treatment of fibromyalgia and is considered an off-label drug.

Antidepressants

Antidepressants such as duloxetine (Cymbalta) and milnacipran (Savella) are sometimes used to treat the pain and fatigue of fibromyalgia.

These drugs may also interfere with rebalancing. neurotransmitters and help improve sleep.

Both duloxetine and milnacipran have been approved by the FDA for the treatment of fibromyalgia.

Other drugs

Other drugs that are not FDA-approved for fibromyalgia, such as sleeping pills, may help with certain symptoms.

Muscle relaxants once used are no longer recommended.

Researchers are also exploring several experimental treatments that may help people with fibromyalgia in the future.

Natural Fibromyalgia Remedies

If medications don’t alleviate your symptoms completely, you can look for an alternative.

Many natural remedies are designed to reduce stress and reduce pain, and they can help you feel better both mentally and physically.

You can use them alone or in combination with traditional medical treatments.

Natural remedies for fibromyalgia include:

occupational and physical therapy that improves your strength and reduces stress on your body

• acupuncture
• massage
• meditation
• body to be approached with care if you have hypermobility
• tai chi
• exercise
• stress reduction techniques
• balanced nutrition rich nutrition
• 5-hydroxytryptophan (5-HTP) amino acid

Therapy has the potential to reduce the stress that causes fibromyalgia symptoms.

Group therapy may be the most accessible option and it can give you the opportunity to meet other people who are experiencing the same problems.

Individual therapy is also available if you prefer one-on-one assistance.

Cognitive behavioral therapy (CBT) is one approach to managing stress.

It is important to note that most alternative treatments for fibromyalgia have not been extensively studied and proven to be effective.

Ask your healthcare provider about the benefits and risks before trying some of these treatments.

Causes of fibromyalgia

Medical professionals and researchers don’t know what causes fibromyalgia.

According to recent research, the cause appears to be a genetic predisposition, supplemented by one or more triggers (such as infection, trauma, or stress).

Experts also do not fully understand what causes the chronic, widespread pain of fibromyalgia.

One theory is that the brain lowers the pain threshold. Sensations that were not painful before become very painful over time.

Another theory is that the brain and nerves may misinterpret or overreact to normal pain signals.

They become more sensitive to the point of causing unnecessary or exaggerated pain.

This may be due to a chemical imbalance in the brain or an abnormality in the dorsal root ganglion, which is a collection of neurons in the spine.

Genes

Fibromyalgia is often inherited.

If you have a family member with this disease, you are at a higher risk of developing it.

Researchers think certain gene mutations may play a role.

They identified several possible genes that influence the transmission of chemical pain signals between nerve cells.

Infections

Past illness can trigger fibromyalgia or aggravate its symptoms.

Infections that may be associated with fibromyalgia include:

• influenza
• pneumonia
• Epstein-Barr virus
• gastrointestinal infections, e.g. due to Salmonella and Shigella bacteria

Injury

Fibromyalgia may develop in people who have experienced severe physical or emotional trauma.

The condition has been associated with post-traumatic stress disorder (PTSD).

Stress

Like injury, stress can have long-term effects on your body.

Stress has been linked to hormonal changes that may contribute to fibromyalgia.

Fibromyalgia tender points

In the past, a person was diagnosed with fibromyalgia if they had widespread pain and tenderness in at least 11 out of 18 defined points throughout the body.

Health workers tested how many of these points were painful by pressing hard on them.

Common tender or trigger points included:

• occiput
• top of shoulders
• upper chest
• outer elbows
• hips
• knees

For the most part, tender points are no longer part of the diagnostic process.

Instead, health care providers may diagnose fibromyalgia if you have pain in four of the five pain areas, as defined by the 2016 Revised Diagnostic Criteria, and you have no other diagnosable medical condition that could explain the pain.

Fibromyalgia pain

Pain is the hallmark of fibromyalgia.

You will feel it in various muscles and other soft tissues around your body.

Pain can range from mild aching to intense and almost unbearable discomfort. Its severity can determine how well you manage day in and day out.

Chest pain

When fibromyalgia hurts in the chest, it can feel like the pain of a heart attack.

Fibromyalgia chest pain is centered in the cartilage that connects the ribs to the sternum.

Pain may radiate to the shoulders and arms.

Fibromyalgia chest pain may be felt:

• acute
• prick
• like burning
• as if you are struggling to catch your breath, which is also a symptom of a heart attack

Back pain

Your back is one of the most common places you will feel pain.

Most people experience low back pain at some point in their lives.

If you have back pain, it may not be clear whether fibromyalgia is to blame or another condition such as arthritis or muscle strain.

Other symptoms such as brain fog and fatigue may point to fibromyalgia as the cause.

A combination of fibromyalgia and arthritis is also possible.

The same medications you take to relieve other symptoms of fibromyalgia can also help with back pain.

Stretching and strengthening exercises will help support the muscles and other soft tissues in your back.

Leg pain

You may feel fibromyalgic pain in the muscles and soft tissues of your legs.

Fibromyalgia leg pain may resemble the stiffness of arthritis or the soreness of a pulled muscle.

Pain can be described as deep, burning or throbbing.

Sometimes fibromyalgia in the legs feels like numbness or tingling.

You may experience a creepy crawling sensation.

An uncontrollable urge to move the legs is a sign of restless legs syndrome, which can be associated with fibromyalgia.

Fatigue sometimes manifests itself in the legs. Your limbs may feel heavy, as if weighed down.

Fibromyalgia risk factors

Available research has not yet identified the exact cause of fibromyalgia.

Factors that may increase the risk of developing it include:

• Sex. Most cases of fibromyalgia are currently diagnosed in women, but the reason for this discrepancy is not clear.
• Age. You are more likely to be diagnosed in middle age and your risk increases as you get older. Children can also develop fibromyalgia.
• Family history. If you have close family members with fibromyalgia, you may be at greater risk of developing it.
• History of other states. Although fibromyalgia is not a form of arthritis, rheumatoid arthritis (RA) can increase the risk of fibromyalgia. Fibromyalgia also affects about 30 percent of people with lupus.

Research continues to develop to better understand this condition and its origins.

Fibromyalgia and autoimmunity

In autoimmune diseases such as rheumatoid arthritis and lupus, the body mistakenly targets its own tissues.

The immune system uses proteins called autoantibodies to attack joints or other healthy tissues in the same way that it normally attacks viruses or bacteria.

The presence of a small amount of autoantibodies is normal, but a high level may indicate an autoimmune disease.

Autoimmune diseases and fibromyalgia have some overlapping symptoms such as fatigue and trouble concentrating.

It can be difficult for healthcare providers to tell if you have an autoimmune disease or fibromyalgia.

You can even have both types of states at the same time.

The overlap of symptoms has led to the theory that fibromyalgia may also be an autoimmune disease.

This claim has been difficult to prove, in part because there is little evidence that autoantibodies are involved in fibromyalgia.

Fibromyalgia also does not traditionally cause inflammation. Inflammation is a common symptom of autoimmune diseases.

However, a small 2021 study found that autoantibodies may eventually contribute to fibromyalgia.

In the study, the researchers injected mice with autoantibodies from people with or without fibromyalgia.

Mice injected with human autoantibodies with fibromyalgia began to experience fibromyalgia-like symptoms such as reduced muscle strength and increased sensitivity to pain (eg, cold).

Mice injected with autoantibodies from healthy humans showed no symptoms.

Different A 2021 study from Taiwan pointed to a link between fibromyalgia and the inflammatory autoimmune disease, Sjögren’s disease.

According to data collected between 2000 and 2012, people with fibromyalgia were twice as likely to develop Sjogren’s syndrome than people without fibromyalgia.

More research is needed, but the results of these studies are encouraging.

If fibromyalgia is an autoimmune disease, treatment of the autoimmune disease also has the potential to help treat fibromyalgia.

Fibromyalgia in women

According to the Centers for Disease Control and Prevention (CDC), fibromyalgia is twice as common in women as it is in men.

Research has traditionally concluded that at least 80 to 90 percent of cases of fibromyalgia are diagnosed in women, according to the 2018 Fibromyalgia Diagnosis Bias Study.

However, fibromyalgia may be underestimated in men.

Fibromyalgia symptoms tend to be more severe in women than in men.

People assigned female at birth have more common pain, irritable bowel syndrome (IBS) symptoms, and morning fatigue than people assigned male at birth.

Painful periods are also common.

In addition, the transition to menopause may exacerbate fibromyalgia.

Complicating matters is the fact that some of the symptoms of menopause and fibromyalgia look almost the same.

Fibromyalgia in men

Men can have fibromyalgia, but it may go undiagnosed because it is considered a predominantly female disease.

More men are diagnosed when applying the 2016 diagnostic criteria, according to the 2018 Bias Study.

When the German study data was re-analyzed, the researchers found that women made up only 59.2 percent of cases of fibromyalgia.

This means that men accounted for 40.8 percent of cases.

Men with fibromyalgia may have severe pain and emotional symptoms. This condition can affect the quality of their lives, careers, and relationships. 2018 survey.

Part of the stigma and difficulty in diagnosing stems from the societal expectation that men in pain should “get over it.”

Those who see a doctor may experience emotional discomfort and the possibility that their complaints will not be taken seriously.

Fibromyalgia Diagnosis

A healthcare provider may diagnose you with fibromyalgia if you have had widespread pain.