Meniere forum. Meniere’s Disease: Symptoms, Treatments, and Support Forums
What are the main symptoms of Meniere’s disease. How is Meniere’s disease diagnosed and treated. Where can people find support for Meniere’s disease online. What is the difference between Meniere’s disease and vestibular migraine. Can Meniere’s disease go into remission over time. How does Meniere’s disease impact quality of life. What research is being done on new treatments for Meniere’s disease.
Understanding Meniere’s Disease: An Overview
Meniere’s disease is a chronic inner ear disorder characterized by episodes of vertigo, fluctuating hearing loss, tinnitus, and aural fullness. Named after French physician Prosper Ménière who first described the condition in 1861, this vestibular disorder can significantly impact a person’s quality of life.
The exact cause of Meniere’s disease remains unknown, but it is believed to be related to abnormal fluid buildup in the inner ear. This condition typically affects only one ear, though some people may experience bilateral symptoms over time.
Key Facts About Meniere’s Disease
- Affects approximately 0.2% of the population
- Most commonly diagnosed between ages 40-60
- Slightly more prevalent in women than men
- No cure exists, but treatments can help manage symptoms
Recognizing the Symptoms of Meniere’s Disease
The hallmark symptoms of Meniere’s disease often occur in episodes or “attacks” that can last from 20 minutes to several hours. Understanding these symptoms is crucial for early diagnosis and management.
Primary Symptoms of Meniere’s Disease
- Vertigo: A spinning sensation that can be severe and debilitating
- Fluctuating hearing loss: Often affecting low frequencies initially
- Tinnitus: Ringing, buzzing, or roaring sounds in the ear
- Aural fullness: A feeling of pressure or fullness in the affected ear
Do these symptoms always occur together? While the classic presentation of Meniere’s disease includes all four symptoms, some individuals may experience only a subset of these symptoms, especially in the early stages of the condition.
Diagnosing Meniere’s Disease: Challenges and Approaches
Diagnosing Meniere’s disease can be challenging as there is no single definitive test. Instead, diagnosis typically involves a combination of medical history, physical examination, and various diagnostic tests.
Common Diagnostic Procedures
- Audiometry to assess hearing loss
- Electrocochleography (ECoG) to measure inner ear fluid pressure
- Vestibular evoked myogenic potential (VEMP) testing
- MRI to rule out other conditions like acoustic neuroma
Is a definitive diagnosis always possible? Due to the episodic nature of Meniere’s disease and overlap with other vestibular disorders, reaching a definitive diagnosis can sometimes take time and may require multiple evaluations.
Treatment Options for Meniere’s Disease
While there is no cure for Meniere’s disease, various treatment options can help manage symptoms and improve quality of life. Treatment approaches often involve a combination of lifestyle modifications, medications, and in some cases, surgical interventions.
Conservative Management Strategies
- Dietary modifications (low-salt diet)
- Avoiding triggers (stress, caffeine, alcohol)
- Vestibular rehabilitation exercises
- Use of hearing aids when necessary
Medications for Symptom Control
- Diuretics to reduce fluid retention
- Antihistamines or benzodiazepines for vertigo
- Steroids (oral or intratympanic) for acute attacks
- Betahistine (in some countries) to improve blood flow in the inner ear
Are there any new treatments being researched? Recent clinical trials have explored the use of gentamicin injections, endolymphatic sac decompression, and vestibular nerve section for severe cases. Additionally, research into the potential benefits of cochlear implants for bilateral Meniere’s disease is ongoing.
Living with Meniere’s Disease: Coping Strategies and Lifestyle Adjustments
Adapting to life with Meniere’s disease often requires significant lifestyle changes and the development of coping strategies. Many individuals find that a combination of medical treatment and self-management techniques helps them maintain a good quality of life.
Practical Tips for Managing Meniere’s Disease
- Keep a symptom diary to identify triggers
- Practice stress-reduction techniques like meditation or yoga
- Use assistive devices during vertigo attacks
- Educate family and colleagues about the condition
- Join support groups or online forums for shared experiences
How can one prepare for unexpected vertigo attacks? Creating an “emergency kit” with anti-vertigo medications, a small pillow, and a list of emergency contacts can help manage sudden onset of symptoms, especially when away from home.
Meniere’s Disease vs. Other Vestibular Disorders
Meniere’s disease shares symptoms with several other vestibular disorders, which can sometimes lead to misdiagnosis or delayed diagnosis. Understanding the differences between these conditions is crucial for proper treatment and management.
Comparing Meniere’s Disease to Similar Conditions
Condition | Key Differences |
---|---|
Vestibular Migraine | Typically includes headaches; hearing loss less common |
Benign Paroxysmal Positional Vertigo (BPPV) | Vertigo triggered by specific head movements; no hearing loss |
Labyrinthitis | Usually acute onset; often follows viral infection |
Acoustic Neuroma | Gradual, unilateral hearing loss; balance issues less episodic |
Can Meniere’s disease be mistaken for other conditions? Yes, the overlapping symptoms can sometimes lead to misdiagnosis. This is why a thorough evaluation by an experienced otolaryngologist or neurotologist is crucial for accurate diagnosis and appropriate treatment.
The Psychological Impact of Meniere’s Disease
Living with a chronic, unpredictable condition like Meniere’s disease can have significant psychological effects. Many individuals report experiencing anxiety, depression, and social isolation as a result of their symptoms.
Common Psychological Challenges
- Fear of having an attack in public
- Anxiety about potential hearing loss progression
- Frustration with the unpredictable nature of symptoms
- Depression related to lifestyle limitations
- Strained relationships due to the impact on daily activities
How can individuals address the psychological aspects of Meniere’s disease? Seeking support from mental health professionals, joining support groups, and practicing mindfulness techniques can all be beneficial in managing the emotional toll of the condition.
Research and Future Directions in Meniere’s Disease Management
Ongoing research into Meniere’s disease aims to better understand its underlying causes and develop more effective treatments. Several promising areas of study are currently underway.
Current Research Focus Areas
- Genetic factors contributing to Meniere’s disease
- Role of autoimmunity in disease development
- Novel drug therapies targeting inner ear fluid regulation
- Improved diagnostic techniques using advanced imaging
- Vestibular implants for severe cases
What potential breakthroughs are on the horizon? While it’s difficult to predict specific outcomes, researchers are optimistic about developing targeted therapies that could potentially reverse or prevent the progression of Meniere’s disease in the future.
As research continues, individuals with Meniere’s disease can benefit from staying informed about the latest developments and discussing new treatment options with their healthcare providers. The landscape of Meniere’s disease management is evolving, offering hope for improved outcomes and quality of life for those affected by this challenging condition.
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Ménière’s Disease, Cochlear Type | JAMA Otolaryngology–Head & Neck Surgery
Ménière’s Disease, Cochlear Type | JAMA Otolaryngology–Head & Neck Surgery | JAMA Network
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Article
July 1955
MAURICE SALTZMAN, M. D.
Author Affiliations
Philadelphia
From the Hearing Clinic, Department of Oto-Rhinology, Temple University School of Medicine.
AMA Arch Otolaryngol. 1955;62(1):59-61. doi:10.1001/archotol.1955.03830010061008
Full Text
Abstract
The cochlear type of Ménière’s disease was described by Brunner.1 Deafness was the cardinal symptom, and there was no history of any vertiginous attack. Williams and associates2 reported a number of cases of endolymphatic hydrops without vertigo. Their diagnosis was based on a history of an allergic background, a fluctuating low-tone hearing loss of sudden onset, and diplacusis. As a confirmatory therapeutic test, these authors cited the favorable results they obtained from the administration of histamine.
The audiologic study of Ménière patients during the past 12 years yielded some interesting results. The Ménière cochlear function seems to be encumbered with numerous pathologicophysiologic details. These are revealed in relation to tonal perception, selective hearing, threshold of discomfort, and intelligibility of speech. To be sure, the great majority of my patients presented the complete symptom complex of vertigo, deafness, and tinnitus. The aim is to gather the facts that make
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Terrible dizziness, no more strength
#1
900 06 #2
#3
Guest
maybe something vascular. They say massage of the neck and head helps and exercises0005
Guest
If dizziness is caused by the dislocation of the crystals in the inner ear, neck massage is contraindicated. Make an appointment with an otolaryngologist, author. Look for familiarization as one of the causes of dizziness, an excerpt from the transfer on YouTube, dial – Malyshev’s dizziness. about the eple maneuver. February 21, 2020 Effective treatment in a hospital: Cavinton, trental are instilled, mydocalm is administered intramuscularly. Take tagistine, tanakan, mexidol and cinnarizine. Massage and manual therapy. There will be relief.
#7
Elena
It says dizziness for 30 seconds when changing body position. And I have all day. Could it be? And it rings in my ear when I lie down
#8
Guest
Good afternoon. I have a similar situation, I can not sleep on my left side. And it happens that when you go it tends to the left, that you have to cuddle up to everything in a row (the feeling that you are falling). Sometimes you lie down, get up and everything floats. A bunch of examinations and no result, they put osteochondrosis and instability of the cervical vertebrae, vasoconstriction. Did you have any kind of injury? 9Elsa
I had the same experience. Does it take you long? It just all started with dizziness too, I really walked along the wall, everything swam before my eyes, and then it got much worse, I endured it, and one evening I began to choke. I could hardly breathe. They took me away in an ambulance and my long examinations and torment began .. just if you have it not so long ago, then I do not advise you to score, it can only get worse.
Thanks, of course, to our stupid doctors, who created the appearance of treatment and real help from them really was not. Good thing she didn’t die. But this is more my merit, not theirs.
#11
Elena
The same. It leans me to the right. There were no injuries. The neck cannot give permanent symptoms. I can’t ride the subway at all.
#12
Elsa
I had the same. Does it take you long? It just all started with dizziness too, I really walked along the wall, everything swam before my eyes, and then it got much worse, I endured it, and one evening I began to choke. I could hardly breathe. They took me away in an ambulance and my long examinations and torment began .. just if you have it not so long ago, then I do not advise you to score, it can only get worse.
Thanks, of course, to our stupid doctors, who created the appearance of treatment and there was really no real help from them. Good thing she didn’t die. But this is more my merit, not theirs.
#13
Guest
I am told that it is because of the blood vessels, what is being squeezed by the vertebrae, the blood starts to go wrong. Therefore, when you lie down, the blood begins to flow differently. 5
Elena
This is said when nothing to say. If something was so squeezed there, then people would immediately lose consciousness. Dizziness when clamping is light and short-term. And now they told me to do a CT scan of the inner ear, but I don’t know how. I can’t lie on my back, at all
#16
Guest
I have already visited many doctors. Even the manual one had it all to no avail. Today it grabbed me, leaned to the left, as if they were pushing you, you couldn’t walk, the pressure had risen. I don’t know what to do next, but it’s impossible to live like this…
It started like this for me in 2012, it stopped for a while, and now it starts again. The first time I went to the MRI with severe dizziness, I could hardly stand it, I could not get up, they led me by the arms.
And now it’s like this at times, I don’t know what else to examine
#17
Natalya
and I had wild dizziness due to an ovarian cyst, as it turned out, doctors don’t care about it either. do not speak
#18
Guest
I have already visited many doctors. Even the manual one had it all to no avail. Today it grabbed me, leaned to the left, as if they were pushing you, you couldn’t walk, the pressure had risen. I don’t know what to do next, but it’s impossible to live like this…
It started for me in 2012, so it stopped for a while, and now again. The first time I went to the MRI with severe dizziness, I could hardly stand it, I could not get up, they led me by the arms.
And now it’s like this at times, I don’t know what else to examine
#19
Elena
I am very afraid of Meniere’s disease. It looks like I have
#20
Elena
I am very afraid of Meniere’s disease. I seem to be
#21
Elena
Cavinton is not allowed, my blood pressure is very low. I am allergic to betaserk. The ambush is shorter. I was in the hospital for 10 days, I gave the last money, and they injected me with tivortin and mildronat. February 21, 2020 All symptoms are similar. I have already read about the inner ear. I understand you, because I feel the same way. It is impossible to live in peace. And when you still don’t know the exact reason, you don’t know what to drink or what kind of injections to do.
Do you feel like this every day?
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9February 21, 2020 14:01
#24
Guest
I have for some reason, there is some kind of tightness on the left side, all this pain goes into the leg, the leg still becomes straight cotton and heavy.
Do you have the same?
#25
#26
Elena
It used to be seizures, but now it’s bad 24 hours a day. Crises at night. I don’t sleep for days. I can’t lie down for a long time, I can’t sit either. This is how I jump all day long: I lie down, I sit down, I cry
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I myself am in despair. The head is not mine. Nothing helps. There is no life. February 21, 2020 How tired of it all. I go to the doctors, but they can’t really say anything. They also refer to the growth that I am tall 1.80, while the weight is 63, that all the muscles in the neck are tense.
And on the left side I haven’t slept for 7 years already, as soon as I lie down, everything starts to swim and I feel terribly sick.
She herself is also only 24 years old, you know how insulting it is, I want to live in peace, but this state … Do not work kindly, you think the day would end faster. February 21, 2020 And my legs and arms are also icy during attacks. I drink tenoten. And the left hand goes numb when, for example, you dry your hair with a hairdryer and starts …#32
Guest
Variants:
Cervical artery compression
Otolithiasis
Meniere’s disease 9 0085 Hypertension/hypotension
Neurosis#33
Guest
I had severe dizziness, they checked everything and everything, it turned out to be a neurosis.
I drank phenibut for a month, strezam for two months, psychotherapy went through and dizziness disappeared as it never was.
Donate more blood for ferritin.#34
Elena
I had the same experience Does it take you long? It just all started with dizziness too, I really walked along the wall, everything swam before my eyes, and then it got much worse, I endured it, and one evening I began to choke. I could hardly breathe. They took me away in an ambulance and my long examinations and torment began .. just if you have it not so long ago, then I do not advise you to score, it can only get worse.
Thanks, of course, to our stupid doctors, who created the appearance of treatment and real help from them really was not. Good thing she didn’t die. But this is more my merit, not theirs.one fine day, while swimming in the pool, I almost drowned in it, an attack of dizziness, then it turned out that it was a cyst, it’s good that I don’t remember what they are called, which resolve themselves, as it passes, everything stops, but I have to deal with menopause, it happened 2 times already, as soon as the head starts to spin, the left side hurts, I drink glycine, pressure pills, betaserk, and how much more this will be, it is not known, doctors recommend chemical hormones, I somehow get by with Bonisan 9February 21, 2020 I have this month, I walk along the wall.
What could it be? How did you get rid of dizziness?
one fine day, while swimming in the pool, I almost drowned in it, an attack of dizziness, then it turned out that it was a cyst, it’s good that I don’t remember what they are called, which resolve themselves, as it passes, everything stops, but I have to deal with menopause, it happened 2 times already, as soon as the head starts to spin, the left side hurts, I drink glycine, pressure pills, betaserk, and how much more this will be, it is not known, doctors recommend chemical hormones, I somehow get by with Bonisan
#36
Elena
And I am 1.77, weighed 67, and now 74, because I don’t move at all, I don’t even turn my head. I sit, not moving, and eat, and in horror I think that if this is Meniere, then how to live on
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# 37
#38
Guest
I read about Meniere’s disease.
There are similar symptoms. But everything shows up differently. Most likely it comes from blood vessels + muscle tension + more nerves.
My hemoglobin was also low. Try drinking fenyuls, and also drops of valemedin, sedatives.
Every time I face this myself, then you start to calm yourself down. When you start to panic and think about something else (meniere, etc.), you make yourself even worse. I understand that it’s hard, there’s no getting away from it, if there is a problem in the neck, then nothing can be done, no manual and pills will help. I also drank tanakan. Betaserk drank, I didn’t feel anything from him.
I also started to do exercises, on the neck, but now they have stopped for now, it seems to me that they click even more in the neck. I was recently at a doctor’s appointment, so she told me, “We will live for a long time, but we will suffer,” she has the same problem, only dizziness is rare, severe headaches that she can’t get up sometimes.
That’s why I’m starting to calm myself down, it’s worth enduring it and most importantly, don’t get nervous.Sometimes I cry, I also think what all this is for, to endure this, it’s sooo unpleasant. And then you begin to reassure yourself, because someone with us would even change places. Some people, knowing that they have a year (or even less) left to live, try to live with joy.
After such conversations with myself, it becomes easier. You just know you have to be patient. No matter how bad it is now.
As I understand it, you also underwent head examinations? And what about the cervical region, for what reason did you turn to a chiropractor? And how long? Perhaps because of this, everything was provoked 9ElenaThere is compression of the cervical arteries (manually unsuccessfully), otolithiasis, I don’t know, doctors and we have not heard about this, but I think not, there the attacks are short. Hypotension is present after quitting smoking, but not critical. Neurosis-100%, and no longer neurosis, but psychosis and despair
Yes, I had an MRI.
There is a relative norm. The neck is bad, but I got used to it. And when I was in the hospital, I was sent for kinesiotherapy. So she pressed me so hard that I screamed in pain, and the doctor said, this is how the clamps appear. After that, I staggered to the ward. And then I stopped sleeping on the right side and a terrible dizziness began. They said drink an antidepressant and you will be happy. But I strongly doubt something.
#42
Elena
Yes, I had an MRI. There is a relative norm. The neck is bad, but I got used to it. And when I was in the hospital, I was sent for kinesiotherapy. So she pressed me so hard that I screamed in pain, and the doctor said, this is how the clamps appear. After that, I staggered to the ward. And then I stopped sleeping on the right side and a terrible dizziness began. They said drink an antidepressant and you will be happy. But I strongly doubt something.
#43
Elena
Did you feel better when your hemoglobin level increased? P. S answered above with regards to the neck
#45
Guest
My mother had monotonous, not short bouts of dizziness during otolithiasis, about five years ago this happened to her, she suffered with them for two months. She went to an otoneurologist, he did some maneuvers for her, and then she herself did exercises that were simpler. Do the same, it won’t get worse. Ask a neurologist for a prescription for phenibut, he personally helped me well, mexidol is also not bad as an antihyposkatic.
#46
Guest
Maybe you really have neurotic vertigo.
Descend or go to the psychotherapist, only look good on responses.
Attention
#47
Guest
It didn’t get any easier, just no such shortness of breath. Somehow I didn’t even have enough air before. Fenules can’t, allergy to B vitamins, just horror 9February 21, 2020 In general, a mixture of dried apricots, raisins, walnuts, honey, lemon, everything through a meat grinder is also useful
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