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Meniere forum. Meniere’s Disease Forum: Symptoms, Treatments, and Support

What are the main symptoms of Meniere’s disease. How is Meniere’s disease diagnosed and treated. Where can patients find support and information about Meniere’s disease. What is the relationship between Meniere’s disease and other vestibular disorders.

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Understanding Meniere’s Disease: An Overview

Meniere’s disease is a complex inner ear disorder that can significantly impact a person’s quality of life. It is characterized by a triad of symptoms: vertigo, fluctuating hearing loss, and tinnitus. Many patients also experience a feeling of fullness or pressure in the affected ear.

The exact cause of Meniere’s disease remains unknown, but it is believed to be related to an abnormal buildup of fluid in the inner ear. This condition affects the balance and hearing mechanisms, leading to its distinctive symptoms.

Key Symptoms of Meniere’s Disease

  • Vertigo: Spinning sensation that can last from 20 minutes to several hours
  • Fluctuating hearing loss: Typically affecting low frequencies initially
  • Tinnitus: Ringing, buzzing, or roaring sounds in the ear
  • Aural fullness: Feeling of pressure or fullness in the affected ear

Is Meniere’s disease a progressive condition. While the severity and frequency of symptoms can vary greatly between individuals, Meniere’s disease is often considered a chronic condition that may progress over time. However, many patients experience periods of remission between episodes.

Diagnosis and Treatment Options for Meniere’s Disease

Diagnosing Meniere’s disease can be challenging as its symptoms overlap with other vestibular disorders. Physicians typically rely on a combination of patient history, physical examination, and various diagnostic tests to make an accurate diagnosis.

Common Diagnostic Procedures

  1. Audiometry: To assess hearing loss and its pattern
  2. Electrocochleography (ECoG): To measure inner ear fluid pressure
  3. Vestibular evoked myogenic potential (VEMP) testing: To evaluate inner ear function
  4. MRI: To rule out other conditions like acoustic neuroma

How is Meniere’s disease treated. Treatment approaches for Meniere’s disease are typically aimed at managing symptoms and preventing attacks. These may include:

  • Dietary modifications: Reducing salt intake to minimize fluid retention
  • Medications: Diuretics, anti-vertigo drugs, or steroids
  • Vestibular rehabilitation: Exercises to improve balance and reduce dizziness
  • Pressure pulse treatment: Devices that apply pressure to the middle ear
  • Surgery: In severe cases, various surgical interventions may be considered

Are there any new treatments being developed for Meniere’s disease. Recent research has explored potential new therapies, including the use of intratympanic gentamicin injections and endolymphatic sac decompression surgery. Additionally, ongoing clinical trials are investigating novel approaches to managing this challenging condition.

Living with Meniere’s Disease: Coping Strategies and Lifestyle Adjustments

Managing Meniere’s disease often requires a multifaceted approach that extends beyond medical treatments. Patients frequently need to make significant lifestyle adjustments to minimize triggers and cope with unpredictable symptoms.

Effective Coping Strategies

  • Stress management techniques: Meditation, yoga, or counseling
  • Sleep hygiene: Maintaining a regular sleep schedule
  • Dietary changes: Avoiding triggers like caffeine, alcohol, and high-sodium foods
  • Safety precautions: Using assistive devices during vertigo attacks
  • Support groups: Connecting with others who understand the challenges

How can patients manage the emotional impact of Meniere’s disease. Living with a chronic condition like Meniere’s can take a toll on mental health. Many patients benefit from cognitive-behavioral therapy or counseling to address anxiety, depression, and the emotional challenges associated with the disease.

Meniere’s Disease vs. Other Vestibular Disorders: Understanding the Differences

Meniere’s disease shares symptoms with several other vestibular disorders, which can sometimes lead to misdiagnosis or delayed treatment. Understanding the distinctions between these conditions is crucial for proper management and care.

Common Vestibular Disorders Often Confused with Meniere’s Disease

  • Vestibular Migraine
  • Benign Paroxysmal Positional Vertigo (BPPV)
  • Labyrinthitis
  • Vestibular Neuritis

How does Meniere’s disease differ from vestibular migraine. While both conditions can cause vertigo and hearing-related symptoms, vestibular migraine is typically associated with headaches and visual disturbances. Meniere’s disease is characterized by its fluctuating hearing loss and the sensation of aural fullness, which are less common in vestibular migraine.

Can a person have both Meniere’s disease and another vestibular disorder. Yes, it is possible for an individual to have multiple vestibular disorders concurrently. This situation, known as comorbidity, can complicate diagnosis and treatment, requiring a comprehensive approach to management.

The Role of Diet and Nutrition in Managing Meniere’s Disease

Dietary modifications play a significant role in managing Meniere’s disease symptoms for many patients. While individual triggers may vary, certain dietary guidelines have shown promise in reducing the frequency and severity of attacks.

Key Dietary Recommendations for Meniere’s Disease

  • Low-sodium diet: Aim for less than 2,000 mg of sodium per day
  • Balanced fluid intake: Maintain consistent hydration throughout the day
  • Limit caffeine and alcohol consumption
  • Avoid processed foods high in additives and preservatives
  • Consider tracking food intake to identify personal triggers

How does a low-sodium diet help manage Meniere’s disease. Reducing sodium intake can help decrease fluid retention in the body, potentially minimizing the buildup of fluid in the inner ear. This may lead to a reduction in symptoms such as vertigo and aural fullness.

Are there any specific foods that Meniere’s patients should avoid. While individual responses may vary, some patients report symptom exacerbation after consuming foods high in tyramine (such as aged cheeses and cured meats) or monosodium glutamate (MSG). It’s advisable to keep a food diary to identify personal triggers.

The Impact of Meniere’s Disease on Daily Life and Work

Meniere’s disease can have a profound impact on an individual’s daily activities, work performance, and overall quality of life. The unpredictable nature of attacks can lead to significant challenges in maintaining a normal routine.

Common Challenges Faced by Meniere’s Patients

  • Difficulty driving or using public transportation
  • Increased absenteeism from work or school
  • Limitations in social activities and hobbies
  • Anxiety about potential attacks in public settings
  • Strain on personal relationships due to the condition’s demands

How can employers accommodate employees with Meniere’s disease. Employers can provide reasonable accommodations such as flexible work hours, remote work options, or modifications to the work environment to reduce triggers. Open communication between employees and employers is key to finding effective solutions.

Are there any legal protections for individuals with Meniere’s disease in the workplace. In many countries, including the United States, Meniere’s disease may be considered a disability under certain circumstances. Laws such as the Americans with Disabilities Act (ADA) provide protections and require employers to make reasonable accommodations for affected employees.

Research and Future Directions in Meniere’s Disease Treatment

Ongoing research into Meniere’s disease aims to improve our understanding of its underlying mechanisms and develop more effective treatments. Scientists and clinicians are exploring various avenues to enhance diagnosis, management, and potentially find a cure for this challenging condition.

Current Areas of Research Focus

  • Genetic factors contributing to Meniere’s disease
  • Role of autoimmunity in disease development
  • Novel drug therapies targeting specific aspects of the disease
  • Advanced imaging techniques for early diagnosis
  • Regenerative medicine approaches to restore inner ear function

What are some promising new treatments on the horizon for Meniere’s disease. Several innovative approaches are currently under investigation, including:

  1. Gene therapy to address potential genetic factors
  2. Stem cell treatments to regenerate damaged inner ear tissues
  3. Targeted drug delivery systems for more effective symptom management
  4. Vestibular implants to restore balance function in severe cases

How can patients stay informed about the latest research developments. Patients can stay updated by following reputable medical journals, joining patient advocacy groups, and participating in clinical trials when appropriate. Many organizations, such as the Vestibular Disorders Association, provide regular updates on research progress and emerging treatments.

Support and Resources for Meniere’s Disease Patients

Living with Meniere’s disease can be challenging, but numerous resources and support systems are available to help patients navigate their condition and improve their quality of life.

Valuable Resources for Meniere’s Patients

  • Online support forums and discussion groups
  • Patient education materials from reputable medical organizations
  • Local support groups and meetups
  • Vestibular rehabilitation specialists
  • Mental health professionals experienced in chronic illness management

Where can patients find reliable information about Meniere’s disease. Trusted sources of information include:

  1. National Institute on Deafness and Other Communication Disorders (NIDCD)
  2. American Academy of Otolaryngology-Head and Neck Surgery Foundation
  3. Vestibular Disorders Association (VeDA)
  4. Meniere’s Society (UK-based but with international resources)

How can family members and friends support someone with Meniere’s disease. Loved ones can provide invaluable support by:

  • Educating themselves about the condition
  • Offering assistance during vertigo attacks
  • Being understanding of the need for lifestyle modifications
  • Accompanying the patient to medical appointments
  • Providing emotional support and encouragement

By accessing these resources and building a strong support network, patients with Meniere’s disease can better manage their condition and maintain a positive outlook on life. The journey with Meniere’s disease may be challenging, but with the right tools and support, many individuals find ways to thrive despite their symptoms.

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Ménière’s Disease, Cochlear Type | JAMA Otolaryngology–Head & Neck Surgery

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Article

July 1955


MAURICE SALTZMAN, M. D.

Author Affiliations

Philadelphia

From the Hearing Clinic, Department of Oto-Rhinology, Temple University School of Medicine.


AMA Arch Otolaryngol. 1955;62(1):59-61. doi:10.1001/archotol.1955.03830010061008

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Abstract

The cochlear type of Ménière’s disease was described by Brunner.1 Deafness was the cardinal symptom, and there was no history of any vertiginous attack. Williams and associates2 reported a number of cases of endolymphatic hydrops without vertigo. Their diagnosis was based on a history of an allergic background, a fluctuating low-tone hearing loss of sudden onset, and diplacusis. As a confirmatory therapeutic test, these authors cited the favorable results they obtained from the administration of histamine.

The audiologic study of Ménière patients during the past 12 years yielded some interesting results. The Ménière cochlear function seems to be encumbered with numerous pathologicophysiologic details. These are revealed in relation to tonal perception, selective hearing, threshold of discomfort, and intelligibility of speech. To be sure, the great majority of my patients presented the complete symptom complex of vertigo, deafness, and tinnitus. The aim is to gather the facts that make

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Terrible dizziness, no more strength

#1

900 06 #2

#3

Guest

maybe something vascular. They say massage of the neck and head helps and exercises0005

Guest

If dizziness is caused by the dislocation of the crystals in the inner ear, neck massage is contraindicated. Make an appointment with an otolaryngologist, author. Look for familiarization as one of the causes of dizziness, an excerpt from the transfer on YouTube, dial – Malyshev’s dizziness. about the eple maneuver. February 21, 2020 Effective treatment in a hospital: Cavinton, trental are instilled, mydocalm is administered intramuscularly. Take tagistine, tanakan, mexidol and cinnarizine. Massage and manual therapy. There will be relief.

#7

Elena

It says dizziness for 30 seconds when changing body position. And I have all day. Could it be? And it rings in my ear when I lie down

#8

Guest

Good afternoon. I have a similar situation, I can not sleep on my left side. And it happens that when you go it tends to the left, that you have to cuddle up to everything in a row (the feeling that you are falling). Sometimes you lie down, get up and everything floats. A bunch of examinations and no result, they put osteochondrosis and instability of the cervical vertebrae, vasoconstriction. Did you have any kind of injury? 9Elsa

I had the same experience. Does it take you long? It just all started with dizziness too, I really walked along the wall, everything swam before my eyes, and then it got much worse, I endured it, and one evening I began to choke. I could hardly breathe. They took me away in an ambulance and my long examinations and torment began .. just if you have it not so long ago, then I do not advise you to score, it can only get worse.
Thanks, of course, to our stupid doctors, who created the appearance of treatment and real help from them really was not. Good thing she didn’t die. But this is more my merit, not theirs.

#11

Elena

The same. It leans me to the right. There were no injuries. The neck cannot give permanent symptoms. I can’t ride the subway at all.

#12

Elsa

I had the same. Does it take you long? It just all started with dizziness too, I really walked along the wall, everything swam before my eyes, and then it got much worse, I endured it, and one evening I began to choke. I could hardly breathe. They took me away in an ambulance and my long examinations and torment began .. just if you have it not so long ago, then I do not advise you to score, it can only get worse.
Thanks, of course, to our stupid doctors, who created the appearance of treatment and there was really no real help from them. Good thing she didn’t die. But this is more my merit, not theirs.

#13

Guest

I am told that it is because of the blood vessels, what is being squeezed by the vertebrae, the blood starts to go wrong. Therefore, when you lie down, the blood begins to flow differently. 5

Elena

This is said when nothing to say. If something was so squeezed there, then people would immediately lose consciousness. Dizziness when clamping is light and short-term. And now they told me to do a CT scan of the inner ear, but I don’t know how. I can’t lie on my back, at all

#16

Guest

I have already visited many doctors. Even the manual one had it all to no avail. Today it grabbed me, leaned to the left, as if they were pushing you, you couldn’t walk, the pressure had risen. I don’t know what to do next, but it’s impossible to live like this…
It started like this for me in 2012, it stopped for a while, and now it starts again. The first time I went to the MRI with severe dizziness, I could hardly stand it, I could not get up, they led me by the arms.
And now it’s like this at times, I don’t know what else to examine

#17

Natalya

and I had wild dizziness due to an ovarian cyst, as it turned out, doctors don’t care about it either. do not speak

#18

Guest

I have already visited many doctors. Even the manual one had it all to no avail. Today it grabbed me, leaned to the left, as if they were pushing you, you couldn’t walk, the pressure had risen. I don’t know what to do next, but it’s impossible to live like this…
It started for me in 2012, so it stopped for a while, and now again. The first time I went to the MRI with severe dizziness, I could hardly stand it, I could not get up, they led me by the arms.
And now it’s like this at times, I don’t know what else to examine

#19

Elena

I am very afraid of Meniere’s disease. It looks like I have

#20

Elena

I am very afraid of Meniere’s disease. I seem to be

#21

Elena

Cavinton is not allowed, my blood pressure is very low. I am allergic to betaserk. The ambush is shorter. I was in the hospital for 10 days, I gave the last money, and they injected me with tivortin and mildronat. February 21, 2020 All symptoms are similar. I have already read about the inner ear. I understand you, because I feel the same way. It is impossible to live in peace. And when you still don’t know the exact reason, you don’t know what to drink or what kind of injections to do.
Do you feel like this every day?

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    9February 21, 2020 14:01

    #24

    Guest

    I have for some reason, there is some kind of tightness on the left side, all this pain goes into the leg, the leg still becomes straight cotton and heavy. Do you have the same?

    #25

    #26

    Elena

    It used to be seizures, but now it’s bad 24 hours a day. Crises at night. I don’t sleep for days. I can’t lie down for a long time, I can’t sit either. This is how I jump all day long: I lie down, I sit down, I cry Shattered into the trash by a Happy Event

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    #27

    Elena

    My thigh is mostly numb, even with needles . But I slept on it all the time until yesterday. And my feet are cold, they’re freezing. I quit smoking a month ago, it would have been better if I had known how life would hit me. Elena

    I myself am in despair. The head is not mine. Nothing helps. There is no life. February 21, 2020 How tired of it all. I go to the doctors, but they can’t really say anything. They also refer to the growth that I am tall 1.80, while the weight is 63, that all the muscles in the neck are tense.
    And on the left side I haven’t slept for 7 years already, as soon as I lie down, everything starts to swim and I feel terribly sick.
    She herself is also only 24 years old, you know how insulting it is, I want to live in peace, but this state … Do not work kindly, you think the day would end faster. February 21, 2020 And my legs and arms are also icy during attacks. I drink tenoten. And the left hand goes numb when, for example, you dry your hair with a hairdryer and starts …

    #32

    Guest

    Variants:
    Cervical artery compression
    Otolithiasis
    Meniere’s disease 9 0085 Hypertension/hypotension
    Neurosis

    #33

    Guest

    I had severe dizziness, they checked everything and everything, it turned out to be a neurosis. I drank phenibut for a month, strezam for two months, psychotherapy went through and dizziness disappeared as it never was.
    Donate more blood for ferritin.

    #34

    Elena

    I had the same experience Does it take you long? It just all started with dizziness too, I really walked along the wall, everything swam before my eyes, and then it got much worse, I endured it, and one evening I began to choke. I could hardly breathe. They took me away in an ambulance and my long examinations and torment began .. just if you have it not so long ago, then I do not advise you to score, it can only get worse.
    Thanks, of course, to our stupid doctors, who created the appearance of treatment and real help from them really was not. Good thing she didn’t die. But this is more my merit, not theirs.

    one fine day, while swimming in the pool, I almost drowned in it, an attack of dizziness, then it turned out that it was a cyst, it’s good that I don’t remember what they are called, which resolve themselves, as it passes, everything stops, but I have to deal with menopause, it happened 2 times already, as soon as the head starts to spin, the left side hurts, I drink glycine, pressure pills, betaserk, and how much more this will be, it is not known, doctors recommend chemical hormones, I somehow get by with Bonisan 9February 21, 2020 I have this month, I walk along the wall. What could it be? How did you get rid of dizziness?

    one fine day, while swimming in the pool, I almost drowned in it, an attack of dizziness, then it turned out that it was a cyst, it’s good that I don’t remember what they are called, which resolve themselves, as it passes, everything stops, but I have to deal with menopause, it happened 2 times already, as soon as the head starts to spin, the left side hurts, I drink glycine, pressure pills, betaserk, and how much more this will be, it is not known, doctors recommend chemical hormones, I somehow get by with Bonisan

    #36

    Elena

    And I am 1.77, weighed 67, and now 74, because I don’t move at all, I don’t even turn my head. I sit still and eat, and in horror I think that if this is Meniere, then how to live on

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      #38

      Guest

      I read about Meniere’s disease. There are similar symptoms. But everything shows up differently. Most likely it comes from blood vessels + muscle tension + more nerves.
      My hemoglobin was also low. Try drinking fenyuls, and also drops of valemedin, sedatives.
      Every time I face this myself, then you start to calm yourself down. When you start to panic and think about something else (meniere, etc.), you make yourself even worse. I understand that it’s hard, there’s no getting away from it, if there is a problem in the neck, then nothing can be done, no manual and pills will help. I also drank tanakan. Betaserk drank, I didn’t feel anything from him.
      I also started to do exercises, on the neck, but now they have stopped for now, it seems to me that they click even more in the neck. I was recently at a doctor’s appointment, so she told me, “We will live for a long time, but we will suffer,” she has the same problem, only dizziness is rare, severe headaches that she can’t get up sometimes.
      That’s why I’m starting to calm myself down, it’s worth enduring it and most importantly, don’t get nervous. Sometimes I cry, I also think what all this is for, to endure this, it’s sooo unpleasant. And then you begin to reassure yourself, because someone with us would even change places. Some people, knowing that they have a year (or even less) left to live, try to live with joy.
      After such conversations with myself, it becomes easier. You just know you have to be patient. No matter how bad it is now.
      As I understand it, you also underwent head examinations? And what about the cervical region, for what reason did you turn to a chiropractor? And how long? Perhaps because of this, everything was provoked 9Elena

      There is compression of the cervical arteries (manually unsuccessfully), otolithiasis, I don’t know, doctors and we have not heard about this, but I think not, there the attacks are short. Hypotension is present after quitting smoking, but not critical. Neurosis-100%, and no longer neurosis, but psychosis and despair

      Yes, I had an MRI. There is a relative norm. The neck is bad, but I got used to it. And when I was in the hospital, I was sent for kinesiotherapy. So she pressed me so hard that I screamed in pain, and the doctor said, this is how the clamps appear. After that, I staggered to the ward. And then I stopped sleeping on the right side and a terrible dizziness began. They said drink an antidepressant and you will be happy. But I strongly doubt something.

      #42

      Elena

      Yes, I had an MRI. There is a relative norm. The neck is bad, but I got used to it. And when I was in the hospital, I was sent for kinesiotherapy. So she pressed me so hard that I screamed in pain, and the doctor said, this is how the clamps appear. After that, I staggered to the ward. And then I stopped sleeping on the right side and a terrible dizziness began. They said drink an antidepressant and you will be happy. But I strongly doubt something.

      #43

      Elena

      Did you feel better when your hemoglobin level increased? P. S answered above with regards to the neck

      #45

      Guest

      My mother had monotonous, not short bouts of dizziness during otolithiasis, about five years ago this happened to her, she suffered with them for two months. She went to an otoneurologist, he did some maneuvers for her, and then she herself did exercises that were simpler. Do the same, it won’t get worse. Ask a neurologist for a prescription for phenibut, he personally helped me well, mexidol is also not bad as an antihyposkatic.

      #46

      Guest

      Maybe you really have neurotic vertigo. Descend or go to the psychotherapist, only look good on responses.

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      #47

      Guest

      It didn’t get any easier, just no such shortness of breath. Somehow I didn’t even have enough air before. Fenules can’t, allergy to B vitamins, just horror 9February 21, 2020 In general, a mixture of dried apricots, raisins, walnuts, honey, lemon, everything through a meat grinder is also useful

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