Meniere forum. Meniere’s Disease: Symptoms, Treatments, and Support Forums
What are the main symptoms of Meniere’s disease. How is Meniere’s disease diagnosed and treated. Where can people with Meniere’s disease find support and information online. What is the difference between Meniere’s disease and vestibular migraine. How does Meniere’s disease impact quality of life. What lifestyle changes can help manage Meniere’s disease symptoms. Are there any promising new treatments or clinical trials for Meniere’s disease.
Understanding Meniere’s Disease: Symptoms and Diagnosis
Meniere’s disease is a complex inner ear disorder that can significantly impact a person’s quality of life. The condition is characterized by a triad of symptoms:
- Vertigo (spinning sensation)
- Fluctuating hearing loss
- Tinnitus (ringing in the ears)
Many patients also experience a feeling of fullness or pressure in the affected ear. These symptoms often occur in episodes that can last from 20 minutes to several hours.
Diagnosing Meniere’s disease can be challenging, as there is no single definitive test. Doctors typically rely on a combination of patient history, physical examination, and various tests to rule out other conditions. These may include:
- Hearing tests
- Balance tests
- Imaging studies (MRI or CT scan)
- Electrocochleography
Is there a specific pattern to Meniere’s disease episodes? While the frequency and severity of episodes can vary greatly between individuals, many patients report that their symptoms tend to cluster, with periods of frequent attacks followed by remission periods.
Treatment Options for Meniere’s Disease
While there is no cure for Meniere’s disease, several treatment options can help manage symptoms and improve quality of life. These include:
Medications
- Diuretics to reduce fluid retention
- Anti-vertigo medications (e.g., meclizine)
- Steroids to reduce inflammation
Lifestyle Changes
- Low-sodium diet
- Avoiding caffeine and alcohol
- Stress management techniques
Vestibular Rehabilitation
This specialized form of physical therapy can help improve balance and reduce vertigo symptoms.
Surgical Interventions
In severe cases that don’t respond to conservative treatments, surgical options may be considered. These can include:
- Endolymphatic sac decompression
- Labyrinthectomy
- Vestibular nerve section
How effective are these treatments? The effectiveness of treatments can vary widely between individuals. Many patients find relief through a combination of approaches, often requiring some trial and error to find the most effective regimen.
Emerging Treatments and Clinical Trials
Research into Meniere’s disease is ongoing, with several promising avenues being explored. One interesting development mentioned in the forum is a clinical trial investigating the repurposed use of allergic rhinitis and allergic asthma drugs to reduce vertigo and hearing loss in Meniere’s disease patients.
Why might allergy medications help with Meniere’s disease? Some researchers believe there may be a connection between allergies and Meniere’s disease, possibly related to inflammation or immune system dysfunction. This theory is still being investigated, but it highlights the complex nature of the condition and the potential for innovative treatment approaches.
Other areas of research include:
- Gene therapy
- Stem cell treatments
- Novel drug delivery methods
- Improved diagnostic techniques
Patients interested in participating in clinical trials can find information through resources like ClinicalTrials.gov or by discussing options with their healthcare provider.
Meniere’s Disease vs. Vestibular Migraine: Understanding the Differences
One topic frequently discussed in the forum is the distinction between Meniere’s disease and vestibular migraine (VM). These conditions can have overlapping symptoms, making diagnosis challenging.
Key Differences:
- Duration of vertigo: Meniere’s episodes typically last hours, while VM attacks can range from minutes to days.
- Hearing symptoms: Fluctuating hearing loss is characteristic of Meniere’s but less common in VM.
- Headache: More common in VM, though not always present.
- Triggers: VM often has identifiable triggers (e.g., certain foods, stress), while Meniere’s triggers are less consistent.
Why is differentiating between these conditions important? Accurate diagnosis is crucial for proper treatment, as management strategies can differ significantly between Meniere’s disease and vestibular migraine.
Some patients may be diagnosed with “vestibular Meniere’s,” a term used to describe cases with features of both conditions. This highlights the complexity of vestibular disorders and the need for individualized treatment approaches.
Living with Meniere’s Disease: Coping Strategies and Lifestyle Adjustments
Meniere’s disease can have a significant impact on daily life, affecting work, social activities, and overall well-being. Forum members share various coping strategies and lifestyle adjustments that have helped them manage their condition:
Dietary Changes
- Reducing salt intake
- Limiting caffeine and alcohol consumption
- Staying well-hydrated
- Identifying and avoiding potential food triggers
Stress Management
- Practicing mindfulness and meditation
- Engaging in regular exercise (as tolerated)
- Seeking counseling or support groups
Sleep Hygiene
- Maintaining a consistent sleep schedule
- Creating a relaxing bedtime routine
- Addressing any sleep disorders (e.g., sleep apnea)
Environmental Modifications
- Using nightlights to improve balance in the dark
- Installing grab bars in the bathroom
- Removing tripping hazards from the home
How can patients track their symptoms and identify potential triggers? Many forum members recommend keeping a detailed symptom diary, noting factors such as diet, stress levels, sleep quality, and weather conditions. This can help identify patterns and potential triggers, allowing for more targeted management strategies.
The Emotional Impact of Meniere’s Disease
Living with a chronic, unpredictable condition like Meniere’s disease can take a significant emotional toll. Forum members often discuss the psychological aspects of their condition, including:
- Anxiety about future attacks
- Depression related to limitations on activities
- Frustration with the unpredictable nature of symptoms
- Social isolation due to hearing loss or fear of vertigo attacks
How can patients address the emotional impact of Meniere’s disease? Some strategies discussed in the forum include:
- Seeking professional mental health support
- Joining support groups (online or in-person)
- Practicing self-compassion and acceptance
- Educating friends and family about the condition
- Exploring creative outlets or hobbies that can be enjoyed even during symptomatic periods
Many forum members emphasize the importance of maintaining a positive outlook while also acknowledging the challenges of living with Meniere’s disease. Sharing experiences and coping strategies with others who understand the condition can be particularly helpful in managing its emotional impact.
Meniere’s Disease and Work: Navigating Professional Challenges
The unpredictable nature of Meniere’s disease can present significant challenges in the workplace. Forum members discuss various strategies for managing their condition while maintaining their professional lives:
Workplace Accommodations
- Flexible work hours or remote work options
- Modifications to the work environment (e.g., better lighting, reduced noise)
- Access to a quiet rest area for managing symptoms
Communication with Employers and Colleagues
- Educating supervisors and coworkers about Meniere’s disease
- Developing an emergency plan for sudden vertigo attacks
- Being open about limitations while emphasizing capabilities
Career Adjustments
- Exploring alternative roles within the same field
- Considering career changes to accommodate the condition
- Investigating disability benefits or part-time work options
What legal protections are available for workers with Meniere’s disease? In many countries, Meniere’s disease may be considered a disability under relevant laws, entitling affected individuals to reasonable accommodations in the workplace. Forum members often advise consulting with human resources departments or legal professionals to understand rights and options.
While managing Meniere’s disease in the workplace can be challenging, many forum members report finding understanding employers and successfully adapting their work lives to accommodate their condition.
The Role of Support Systems in Managing Meniere’s Disease
Having a strong support system can make a significant difference in coping with Meniere’s disease. Forum members frequently discuss the importance of various forms of support:
Family and Friends
- Educating loved ones about the condition
- Communicating needs and limitations clearly
- Accepting help when needed
Healthcare Team
- Building relationships with knowledgeable specialists
- Coordinating care between different providers
- Advocating for oneself in medical settings
Support Groups
- Sharing experiences and coping strategies
- Finding emotional support from others who understand
- Staying informed about new research and treatments
How can online forums like mvertigo.org benefit Meniere’s disease patients? These platforms provide valuable opportunities for:
- Connecting with others who have similar experiences
- Accessing a wealth of collective knowledge and personal insights
- Discussing treatment options and their effectiveness
- Finding emotional support during difficult times
- Staying updated on the latest research and clinical trials
Many forum members express gratitude for the sense of community and understanding they find in online support groups, which can be especially valuable for those who may feel isolated due to their condition.
Meniere’s Disease and Comorbidities: Understanding Related Conditions
Discussions in the forum often touch on the relationship between Meniere’s disease and other health conditions. Some commonly mentioned comorbidities include:
Autoimmune Disorders
Some researchers and patients believe there may be a connection between Meniere’s disease and autoimmune conditions. Forum members discuss conditions such as:
- Rheumatoid arthritis
- Lupus
- Hashimoto’s thyroiditis
Migraine
The relationship between Meniere’s disease and migraine is complex, with some patients experiencing features of both conditions.
Anxiety and Depression
These mental health conditions are often reported by Meniere’s disease patients, either as pre-existing conditions or developing as a result of living with chronic symptoms.
Sleep Disorders
Conditions like sleep apnea may exacerbate Meniere’s symptoms in some patients.
Why is it important to consider comorbidities in Meniere’s disease? Understanding and addressing related conditions can potentially improve overall management and quality of life for patients. Some forum members report improvements in their Meniere’s symptoms when underlying conditions are effectively treated.
Patients are encouraged to discuss any additional symptoms or concerns with their healthcare providers to ensure comprehensive care.
The Future of Meniere’s Disease Research and Treatment
Forum discussions often turn to the future of Meniere’s disease research and potential breakthroughs in treatment. Some areas of interest include:
Genetic Research
Studies are ongoing to identify genetic factors that may contribute to Meniere’s disease, which could lead to more targeted treatments.
Advanced Imaging Techniques
Improved imaging methods may allow for earlier and more accurate diagnosis of Meniere’s disease.
Drug Delivery Systems
Researchers are exploring new ways to deliver medications directly to the inner ear, potentially improving efficacy and reducing side effects.
Vestibular Implants
Similar to cochlear implants for hearing loss, vestibular implants are being developed to help manage balance disorders.
What role can patients play in advancing Meniere’s disease research? Forum members often discuss the importance of:
- Participating in clinical trials when possible
- Sharing detailed symptom information with researchers
- Supporting organizations that fund Meniere’s disease research
- Advocating for increased awareness and funding for vestibular disorder research
While a cure for Meniere’s disease remains elusive, many forum members express hope for continued advancements in understanding and treating this complex condition. The collaborative efforts of researchers, healthcare providers, and patients themselves contribute to the ongoing progress in the field.
mvertigo.org vestibular disorders support forum
Meniere’s – mvertigo.org vestibular disorders support forum
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Ménière’s Disease, Cochlear Type | JAMA Otolaryngology–Head & Neck Surgery
Ménière’s Disease, Cochlear Type | JAMA Otolaryngology–Head & Neck Surgery | JAMA Network
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Article
July 1955
MAURICE SALTZMAN, M. D.
Author Affiliations
Philadelphia
From the Hearing Clinic, Department of Oto-Rhinology, Temple University School of Medicine.
AMA Arch Otolaryngol. 1955;62(1):59-61. doi:10.1001/archotol.1955.03830010061008
Full Text
Abstract
The cochlear type of Ménière’s disease was described by Brunner.1 Deafness was the cardinal symptom, and there was no history of any vertiginous attack. Williams and associates2 reported a number of cases of endolymphatic hydrops without vertigo. Their diagnosis was based on a history of an allergic background, a fluctuating low-tone hearing loss of sudden onset, and diplacusis. As a confirmatory therapeutic test, these authors cited the favorable results they obtained from the administration of histamine.
The audiologic study of Ménière patients during the past 12 years yielded some interesting results. The Ménière cochlear function seems to be encumbered with numerous pathologicophysiologic details. These are revealed in relation to tonal perception, selective hearing, threshold of discomfort, and intelligibility of speech. To be sure, the great majority of my patients presented the complete symptom complex of vertigo, deafness, and tinnitus. The aim is to gather the facts that make
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Terrible dizziness, no more strength
#1
900 06 #2
#3
Guest
maybe something vascular. They say massage of the neck and head helps and exercises0005
Guest
If dizziness is caused by the dislocation of the crystals in the inner ear, neck massage is contraindicated. Make an appointment with an otolaryngologist, author. Look for familiarization as one of the causes of dizziness, an excerpt from the transfer on YouTube, dial – Malyshev’s dizziness. about the eple maneuver. February 21, 2020 Effective treatment in a hospital: Cavinton, trental are instilled, mydocalm is administered intramuscularly. Take tagistine, tanakan, mexidol and cinnarizine. Massage and manual therapy. There will be relief.
#7
Elena
It says dizziness for 30 seconds when changing body position. And I have all day. Could it be? And it rings in my ear when I lie down
#8
Guest
Good afternoon. I have a similar situation, I can not sleep on my left side. And it happens that when you go it tends to the left, that you have to cuddle up to everything in a row (the feeling that you are falling). Sometimes you lie down, get up and everything floats. A bunch of examinations and no result, they put osteochondrosis and instability of the cervical vertebrae, vasoconstriction. Did you have any kind of injury? 9Elsa
I had the same experience. Does it take you long? It just all started with dizziness too, I really walked along the wall, everything swam before my eyes, and then it got much worse, I endured it, and one evening I began to choke. I could hardly breathe. They took me away in an ambulance and my long examinations and torment began .. just if you have it not so long ago, then I do not advise you to score, it can only get worse.
Thanks, of course, to our stupid doctors, who created the appearance of treatment and real help from them really was not. Good thing she didn’t die. But this is more my merit, not theirs.
#11
Elena
The same. It leans me to the right. There were no injuries. The neck cannot give permanent symptoms. I can’t ride the subway at all.
#12
Elsa
I had the same. Does it take you long? It just all started with dizziness too, I really walked along the wall, everything swam before my eyes, and then it got much worse, I endured it, and one evening I began to choke. I could hardly breathe. They took me away in an ambulance and my long examinations and torment began .. just if you have it not so long ago, then I do not advise you to score, it can only get worse.
Thanks, of course, to our stupid doctors, who created the appearance of treatment and there was really no real help from them. Good thing she didn’t die. But this is more my merit, not theirs.
#13
Guest
I am told that it is because of the blood vessels, what is being squeezed by the vertebrae, the blood starts to go wrong. Therefore, when you lie down, the blood begins to flow differently. 5
Elena
This is said when nothing to say. If something was so squeezed there, then people would immediately lose consciousness. Dizziness when clamping is light and short-term. And now they told me to do a CT scan of the inner ear, but I don’t know how. I can’t lie on my back, at all
#16
Guest
I have already visited many doctors. Even the manual one had it all to no avail. Today it grabbed me, leaned to the left, as if they were pushing you, you couldn’t walk, the pressure had risen. I don’t know what to do next, but it’s impossible to live like this…
It started like this for me in 2012, it stopped for a while, and now it starts again. The first time I went to the MRI with severe dizziness, I could hardly stand it, I could not get up, they led me by the arms.
And now it’s like this at times, I don’t know what else to examine
#17
Natalya
and I had wild dizziness due to an ovarian cyst, as it turned out, doctors don’t care about it either. do not speak
#18
Guest
I have already visited many doctors. Even the manual one had it all to no avail. Today it grabbed me, leaned to the left, as if they were pushing you, you couldn’t walk, the pressure had risen. I don’t know what to do next, but it’s impossible to live like this…
It started for me in 2012, so it stopped for a while, and now again. The first time I went to the MRI with severe dizziness, I could hardly stand it, I could not get up, they led me by the arms.
And now it’s like this at times, I don’t know what else to examine
#19
Elena
I am very afraid of Meniere’s disease. It looks like I have
#20
Elena
I am very afraid of Meniere’s disease. I seem to be
#21
Elena
Cavinton is not allowed, my blood pressure is very low. I am allergic to betaserk. The ambush is shorter. I was in the hospital for 10 days, I gave the last money, and they injected me with tivortin and mildronat. February 21, 2020 All symptoms are similar. I have already read about the inner ear. I understand you, because I feel the same way. It is impossible to live in peace. And when you still don’t know the exact reason, you don’t know what to drink or what kind of injections to do.
Do you feel like this every day?
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9February 21, 2020 14:01
#24
Guest
I have for some reason, there is some kind of tightness on the left side, all this pain goes into the leg, the leg still becomes straight cotton and heavy. Do you have the same?
#25
#26
Elena
It used to be seizures, but now it’s bad 24 hours a day. Crises at night. I don’t sleep for days. I can’t lie down for a long time, I can’t sit either. This is how I jump all day long: I’ll lie down, sit down, cry
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I myself am in despair. The head is not mine. Nothing helps. There is no life. February 21, 2020 How tired of it all. I go to the doctors, but they can’t really say anything. They also refer to the growth that I am tall 1.80, while the weight is 63, that all the muscles in the neck are tense.
And on the left side I haven’t slept for 7 years already, as soon as I lie down, everything starts to swim and I feel terribly sick.
She herself is also only 24 years old, you know how insulting it is, I want to live in peace, but this state … Do not work kindly, you think the day would end faster. February 21, 2020 And my legs and arms are also icy during attacks. I drink tenoten. And the left hand goes numb when, for example, you dry your hair with a hairdryer and starts …#32
Guest
Variants:
Cervical artery compression
Otolithiasis
Meniere’s disease 9 0085 Hypertension/hypotension
Neurosis#33
Guest
I had severe dizziness, they checked everything and everything, it turned out to be a neurosis. I drank phenibut for a month, strezam for two months, psychotherapy went through and dizziness disappeared as it never was.
Donate more blood for ferritin.#34
Elena
I had the same experience Does it take you long? It just all started with dizziness too, I really walked along the wall, everything swam before my eyes, and then it got much worse, I endured it, and one evening I began to choke. I could hardly breathe. They took me away in an ambulance and my long examinations and torment began .. just if you have it not so long ago, then I do not advise you to score, it can only get worse.
Thanks, of course, to our stupid doctors, who created the appearance of treatment and real help from them really was not. Good thing she didn’t die. But this is more my merit, not theirs.one fine day, while swimming in the pool, I almost drowned in it, an attack of dizziness, then it turned out that it was a cyst, it’s good that I don’t remember what they are called, which resolve themselves, as it passes, everything stops, but I have to deal with menopause, it happened 2 times already, as soon as the head starts to spin, the left side hurts, I drink glycine, pressure pills, betaserk, and how much more this will be, it is not known, doctors recommend chemical hormones, I somehow get by with Bonisan 9February 21, 2020 I have this month, I walk along the wall. What could it be? How did you get rid of dizziness?
one fine day, while swimming in the pool, I almost drowned in it, an attack of dizziness, then it turned out that it was a cyst, it’s good that I don’t remember what they are called, which resolve themselves, as it passes, everything stops, but I have to deal with menopause, it happened 2 times already, as soon as the head starts to spin, the left side hurts, I drink glycine, pressure pills, betaserk, and how much more this will be, it is not known, doctors recommend chemical hormones, I somehow get by with Bonisan
#36
Elena
And I am 1.77, weighed 67, and now 74, because I don’t move at all, I don’t even turn my head. I sit still, and eat, and in horror I think that if this is Meniere, then how to live on
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#38
Guest
I read about Meniere’s disease. There are similar symptoms. But everything shows up differently. Most likely it comes from blood vessels + muscle tension + more nerves.
My hemoglobin was also low. Try drinking fenyuls, and also drops of valemedin, sedatives.
Every time I face this myself, then you start to calm yourself down. When you start to panic and think about something else (meniere, etc.), you make yourself even worse. I understand that it’s hard, there’s no getting away from it, if there is a problem in the neck, then nothing can be done, no manual and pills will help. I also drank tanakan. Betaserk drank, I didn’t feel anything from him.
I also started to do exercises, on the neck, but now they have stopped for now, it seems to me that they click even more in the neck. I was recently at a doctor’s appointment, so she told me, “We will live for a long time, but we will suffer,” she has the same problem, only dizziness is rare, severe headaches that she can’t get up sometimes.
That’s why I’m starting to calm myself down, it’s worth enduring it and most importantly, don’t get nervous. Sometimes I cry, I also think what all this is for, to endure this, it’s sooo unpleasant. And then you begin to reassure yourself, because someone with us would even change places. Some people, knowing that they have a year (or even less) left to live, try to live with joy.
After such conversations with myself, it becomes easier. You just know you have to be patient. No matter how bad it is now.
As I understand it, you also underwent head examinations? And what about the cervical region, for what reason did you turn to a chiropractor? And how long? Perhaps because of this, everything was provoked 9ElenaThere is compression of the cervical arteries (manually unsuccessfully), otolithiasis, I don’t know, doctors and we have not heard about this, but I think not, there the attacks are short. Hypotension is present after quitting smoking, but not critical. Neurosis-100%, and no longer neurosis, but psychosis and despair
Yes, I had an MRI. There is a relative norm. The neck is bad, but I got used to it. And when I was in the hospital, I was sent for kinesiotherapy. So she pressed me so hard that I screamed in pain, and the doctor said, this is how the clamps appear. After that, I staggered to the ward. And then I stopped sleeping on the right side and a terrible dizziness began. They said drink an antidepressant and you will be happy. But I strongly doubt something.
#42
Elena
Yes, I had an MRI. There is a relative norm. The neck is bad, but I got used to it. And when I was in the hospital, I was sent for kinesiotherapy. So she pressed me so hard that I screamed in pain, and the doctor said, this is how the clamps appear. After that, I staggered to the ward. And then I stopped sleeping on the right side and a terrible dizziness began. They said drink an antidepressant and you will be happy. But I strongly doubt something.
#43
Elena
Did you feel better when your hemoglobin level increased? P. S answered above with regards to the neck
#45
Guest
My mother had monotonous, not short bouts of dizziness during otolithiasis, about five years ago this happened to her, she suffered with them for two months. She went to an otoneurologist, he did some maneuvers for her, and then she herself did exercises that were simpler. Do the same, it won’t get worse. Ask a neurologist for a prescription for phenibut, he personally helped me well, mexidol is also not bad as an antihyposkatic.
#46
Guest
Maybe you really have neurotic vertigo. Descend or go to the psychotherapist, only look good on responses.
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#47
Guest
It didn’t get any easier, just no such shortness of breath. Somehow I didn’t even have enough air before. Fenules can’t, allergy to B vitamins, just horror 9February 21, 2020 In general, a mixture of dried apricots, raisins, walnuts, honey, lemon, everything through a meat grinder is also useful